I am 75 , a widower and have Lymphedema , cellulitis ,a heart problem and arthritis. My daughter, a multiple cancer and NF patient, lives with me as does my son who, like his sister, has NF and cancers plus other problems.
Soon after I lost my wife who died in my arms when her aorta burst. She had so many problems with hospitals and her GP who kicked her off his list when we complained that her gasping for breathe need oxygen treatment and he would not tolerate complaints from patients. When I complained to the group he thought it a joke.
I was forced to move house due to various considerations of family health, having also had to deal with death of parents.
I had been told by Portsmouth hospital that I had no cancer issues though my father had died due to bowel cancer, my brother too, but soon after moving to Cambridgeshire I was diagnosed with prostate cancer and subsequently had over 7 weeks of radio therapy etc which left me with damage to my bowel and lymphedema and cellulitis attacks to add to my heart and arthritis problems.
Both legs swelled so large that I was taken to A&E but the RT department Head later told me categorically that my ongoing problems with swollen legs and feet, cellulitis attacks , burnt bowel, and no lymph glands below the waist was not their fault!
Daily massage of legs and feet do not help though tube grip and pressure stockings have helped though my belly and thighs continue to grow slowly despite all that I do.
Nothing more can be done I am told except for dressings by GP nurses when needed ( I am no longer on the clinic books) but the arthritis in left leg and knee and lower spine is causing pain and also loss of feeling in leg as a hole.
Age etc does indeed weary this old guy!
Primary Lymphedema in 4 limbs & Venous Disease :(
Nail removal on affected lymphedema leg
LVA Surgery with Dr. Wei Chen
scottymeg, needs a peptalk, feeling very low.
Diuretics and lymphedema- yes or no?
