I am 21 years old and have suffered from primary Lymphoedma in my right leg since birth.
I am currently a fashion promotion student at university and have decided that for my last year of my degree i want to create a business plan and potentially start a business for bespoke fashion for lymphoedema patients.
Even after all these years I haven't come to terms with my condition and I think this project will give me the confidence I need, I will after all have to present my idea to 60 classmates who are completely unaware of my condition and have never noticed it.
I often suffer with finding trousers in my size, I am a size 8/10 and yet have to find trousers in a 12/14 to fit my leg which is very frustrating and can at times just look plain ridiculous!
Therefore, my question to you is, do you have the same problem whether it be your arm or leg?
The idea for this business plan is to create fashionable pieces in sizes that fit you, for example, maybe incorporating a size 10 with a size 14? Or even creating clothing using a material with compression combined? If you could give me any ideas you may have it would be greatly appreciated as I am keen to gain as much information and thoughts as I can to help me progress in this project.
The types of fashion I would be looking into would be jeans, jumpsuits, shorts, dresses, shirts and blouses,etc. The idea being that the consumer can feel included in the current fashion trends to give them the confidence and comfort they need.
Also if you could give me an idea of the prices you would be willing to pay for these bespoke garments, I would be looking at prices around £40-£100+ as I would have to consider labour costs and material costs and also the fact the items would have to be tailored to fit individuals
Thank you so much!xx
Well done you! I think that's an amazing idea.
I developed lymphedema in my right leg 2.5 years ago post surgery for cancer. This condition is horrible and whilst I manage to get by day to day it has affected my confidence. My leg is about 40% bigger than left and trousers and boots are a nightmare. I have good and bad days. I am 39, size 10/12.
This is my first post, moved by what you want to do.
I'm generally in jump suits, those baggy triousers and maxi dresses when I go out which is fine but I struggle with work when it's trousers and skirts. Hoping jumpsuits remain fashions or I'll be goosed!
Price range, well, if it makes me feel better I'd pay as much as I could.
Mentally I think is the hardest thing and reading your post actually brought me to tears! I don't really have anyone who understands what I am going through and even the nurses I have for my treatment are now refusing me it because I am not wearing my stockings enough, despite the fact I live at the gym and have a healthy balanced lifestyle!
As a fashion student clothes are the one thing that make me feel better about myself and the frustration of not finding trousers to fit me knocks me down a lot.
I just want to make everyone who is suffering from this condition have something that would make some part of their life a little easier!xx
It's nice to speak to someone who gets it. My friends and family are fairly supportive and say they don't notice it, like you I try and hide it.....but there are times when I can't and it's upsetting.
I do wear my garment 24/7 so it's my life now and I accept that. I just want to try and get it reduced.
I am scared to exercise now, I was fairly fit doing high impact but now it's just walking and occasional swim.
Can you recommend any exercises just to motivate me to try? It's crippling me that I am so scared to get back into some fitness regime.
I was told that swimming is the best exercise for it but I have to say that it has always made my leg a lot worse! This isn't necessarily the case for you in any means so keep at it if you find it works for you!
I tend to do a lot of weight training however i do find that walking /jogging on a treadmill or even cycling and the cross trainer is good? Because it allows you to be in control of the exercise you are doing as well as building your confidence and stamina at your own pace and gradually get yourself back into fitness. I am a diabetic also so eating healthily is something I have to do, but it has also helped a lot with my lymphoedema and my fitness. Drinking plenty of water and ensuring I am having fruit and veg everyday just makes me feel better and makes me want to get up and go to the gym, it has definitely helped with my self confidence as well because I feel so much better for it x
Hi, I do not have the same exact condition (lipoedema with peripheral swelling) but for me, pilates and aquabiking work really well. They are soft on the articulation and are really good for circulation (pilates because you are lying when exercising and aquabiking because of the water). You can even do them wearing your stockings and it can be a pretty intensive work-out without all the impacts that running or tennis have.
I completely agree and yes, fab idea! I never know what I'm waking up to as used to just have a huge right leg - but now my left leg, feet, thighs and abdomen join in at times. I studied fashion many years ago at college and love clothes - but have to live in leggings - which just magnify the lumpy sausage leg problem or huge flappy legged trews which just don't do anything for me as I am plus size but at least they hide it. Slim legged anything that elongates the line of the leg without clinging to it would be a dream. Oh and an elasticated waist for those days when the fluid decides to take up residence in my abdomen. Its bad enough having to deal with it all physically isn't it? Not being able to look good in any clothing just makes it worse. I cried recently when I had no choice but to get a pair of orthopedic looking velcro fastening ankle boots as couldn't even wear ballerina flats anymore.
Hi I am a lymohadeoma sufferer I have it in both legs from cancer treatment I'm 43 years old , my legs are one big problem I have found that asda do jeans they are called wonderfit I usually get them the next size up they cost 20 pound but well worth the price I wish every shop catered for the same condition it is very distressing especially shoes I do really sympathise with u u are not alone .wishing u well .