3,286 members1,691 posts

Swelling from knees up


11 hours agobirty

Hi I have autoimmune hepatitis and take 5 mg prednislone and 100 mg mercaptopurine daily , my liver is doing well , bloods are in normal range. Since August ive been swelling up , it's worse from the knees up although I do get some swelling in my lower legs,feet and ankles, it's also in my face and around my eyes,I'm so tired, I can easily sleep for 10 hours , my liver consultant has told my GP to rule out a cardiac cause by way of an an echo and my gp is disregarding this because my feet and ankles are not really swollen ,I'm taking 40mg frusimide a day which is helping a bit , my thyroid function is normal , I'm really fed up with it now and feel stuck with no answers , I'm 44 ,work part time and have three kids aged 7,10 and 17.


3 Replies

Call your liver consultant, and tell him that your GP is disregarding his recommendations. There could be any number of things going on, and they should be investigated.


Hi,yes I have seen him and told him,he arranged the thyroid blood test,I think a letter will be on its way to my gp,its just so frustrating not knowing what's causing it,I have a telephone appointment with the gp on Wednesday morning to see if she's had any replies to a couple of emails she sent out a month ago,one was to an endocrinologist and the other to a lymphedema clinic,if I dont get a satisfactory answer I think I will have to change my gp.


This seems to be common practice by GPs - not to recommend ECG for any suspected heart trouble. I thought that heart investigation (incl. ECGs) was mandatory under the NHS patient rules. Does anyone know if GP surgeries are charged for hospitals providing this service? I am going to a clinic tomorrow and will ask them what the situation is there. What are the names of patients' bodies, one can request info or complaints? Does anyone know?


You may also like...