I have primary lymphoedema in my lower legs (right more than left), I also have hypermobility syndrome. I get lots of pain in my feet and legs, especially if I spend a lot of time standing. It's worse if I stand but don't walk so stuff like queuing and visiting museums is really painful.
My lymphoedema is relatively mild, my ankles are almost normal size first thing in the morning, and with use of compression stockings, about 3-4 cm bigger in the evening.
How much pain does everyone else experience with their lymphoedema?