I heard about this document in the introduction to the Patients Day at the ILF Conference in Glasgow. You can find it here if you are interested. scotland.gov.uk/Resource/00...
My understanding is that it drew on the Welsh Strategy for Lymphoedema and the patients' voice was articulated through Amanda Platt, the project officer with Macmillan Lymphoedema Project for Scotland. Huge thanks to Amanda, who I was delighted to meet again at the ILF Conference and learn of her new job now that the Project has ended.