Hi everyone . I was diagnosed with secondary lymphoedema in both of my legs back in 1995 - twenty years ago and have faced all the usual struggles coming to terms with a long term medical condition that changes every aspect of your life . During that time I've run support groups for patients and have talked at conferences as an "expert" patitient. I'm a firm believer in treating the person as a whole as I don't believe that just treating the symptoms of lymphoedema fulfills patients needs to be understood . I'd also like to see greater cooperation and linked care between lymphoedema patients who have other major illnesses so that they are not treated in isolation . If anyone needs any advice from a personal patient perspective then I'll try and help or I'll signpost you to people that I think could offer you professional advice
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