Professor Mortimer and world renowned photographer Gemma Levince have teams up to produce a new book 'Lets talk lymphoedema'. We have been lucky enough to read it pre publication and it really is a wonderful resource and deals with all forms of lymphoedema from any cause. Full of information, stories, and advice from a real expert. The book can be purchased from Amazon now for just £10.50.
Excellent new book for those living with or interested... - LSN
I was diagnosed with secondary lymphoedema in my left arm last October. I saw the nurse at the lymphoedema clinic for the first time a month ago. She told me I was lucky to know so much about the condition. This 'luck' has come through lots of internet research which at times has been difficult and confusing. This book would have been an absolute godsend 8 months ago because everything I found is in it, and I can't recommend it highly enough. It's well written and it explains the condition without being frightening.
I found myself crying as I read it because for the first time I felt that someone understood what I was experiencing and answered my questions.
I have just bought this book and read it from cover to cover in one go. It is so informative. I have primary lymphoedema in both legs, feet and toes, from birth. I thought, at 77, I knew most things about my condition, but not at all. I recommend anyone with lymphoedema to buy it - you won't regret it. I have today written to my GP and the practice manager suggesting they buy it - it would benefit so many medical practitioners who have little or no knowledge of lymphoedema. For the first time ever, I now realise that the chronic pain I have in my hips, knees and lower back is probably due to dragging around two very heavy and painful limbs! Thank you Professor Mortimer.
I borrowed this from the library in Bath - probably the same copy mentioned below in Bristol. Really useful read, but slightly disappointing (to me), as I'd hoped for something more comprehensive on self-management. Would be great to find a book that clearly covered the three separate areas (that I'm aware of) - ie primary; secondary post cancer; secondary not associated with cancer. Because services are so patchy around the country, and differentiate massively (at least where I am) between secondary post cancer and secondary not associated with cancer, many of us are pretty much left to our own devices to sort out for ourselves what works and what doesn't work.
I'm fortunate to have access to an excellent specialist nurse in the community service here, but she's just one person all on her own, with a massive case load. I dread to think what will happen if she gets sick or leaves for any reason. Already what she's able to provide is pretty minimal, and largely due to her own dedication and expertise.
So I'm really hungry for information and advice on how to look after myself beyond the basics.