MLD

[Jennymary]

Hi, thinking about having some MLD as it doesn't seem to be available on the NHS here in the West Country where I live, just wondering how many sessions I'd need and a rough guide on pricing, as always thanks for the support and advice

[heretohelp]

I suggest you check the MLD UK website to see if there's an MLD therapist in your area. My daughter has a practice in Cambridge and charges £50 for a full hour of MLD treatment. Hope that helps.

[Rebec in reply to heretohelp]

I live there and will like to have her details. Can you send it directly to me? I paid once a lot more.

[heretohelp in reply to Rebec]

Hi Rebec,

Simplest way is via her website: katejohnmld or by phone on 007956899862.

Good luck,

John

[Rebec in reply to heretohelp]

Many thanks. Will do.

[Rebec in reply to heretohelp]

Hi John,

It seems something is missing from your daughter's webpage as I can't open it.

Can you check it, please?

Vicky

[Lynora in reply to Rebec]

Try this - katejohnmld.vpweb.co.uk/

[Rebec in reply to Lynora]

Thanks. I thought something was missing.

[heretohelp in reply to Rebec]

Hi Vicky,

Click on this link and you'll have an opportunity to send her a message on the Contact Us page.

katejohnmld.vpweb.co.uk

Good luck,

John

[Rebec in reply to heretohelp]

Hi John, i think i recognise your daughter. Doesn't she also work at Arthur Rank Hospice in Cambridge?

[heretohelp in reply to Rebec]

Yes.

She works part-time in the lymphoedema clinic on a Wednesday.

[Rebec in reply to heretohelp]

Unfortunately, she works in Linton which is about 10 miles from Cambridge and I would like to go to someone local.

[julesab]

I had it on NHS and had 2 weeks treatment. I had to travel quite a distance alternate days for bandaging and was off sick. It restricted most things and I am not convinced of the benefit, I had it last year and not been offered it again !!

[Rebec]

I was given MLD in my local Arthur Rank Hospice when my lymphoedema went ovet 20%, if I remember correctly. It was about six sessions and then, it was up to me to pay privately. There are private lymphoedema clinics so you have to find out. Also there are different methods that are used so it will depend which nethod you end up preferring, if you have a choice.

Good luck!

[heretohelp]

I just stumbled across this post so apologies for not seeing it before. My question is this: What exactly is:

4-chamber IPC-therapy equipment from DS Maref a Lymphasys9.

Thank you,

[daxx11 in reply to heretohelp]

it's a four chamber airbag system that inflates and deflates in sequence to encourage the right flow for the limb, you can have it for your legs or arms. I've never used one but have heard they are pretty good for some people. There are systems out there that go up to I believe 12 chambers.

[heretohelp]

Hi daxx11,

Thank you.

I have now managed to locate a manufacturer who supplies the machine in different sizes and I'm hoping to get a sample to trial in the UK.

I'll report back when I know more.

[aepyornis in reply to heretohelp]

Oh yes please report! Would be very interested to hear about your experience.

[heretohelp in reply to aepyornis]

It may take time, but I will keep you informed.

Right now I am in the process of exploring funding options from the EU.

MLD is notoriously difficult to get support for in the UK. The NHS have no therapists and if they believe a patient would benefit from MLD they get referred to a hospice. It seems fundamentally wrong that for those patients who had their lymph nodes removed by the NHS while undergoing a mastectomy, who then have to live with lymphoedema for the rest of their life, get unceremoniously dumped by the NHS.

They should held to account.

[Janey247 in reply to heretohelp]

there are UK IPC devices available. You could try Haddenham Healthcare. I know they do one

[heretohelp in reply to Janey247]

Thanks. I'll look into it.