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Welcome to the
Leukaemia
Support Community for support of
Leukaemia
! We’re very glad you have chosen to be a part of our community. The
Leukaemia
Support community - offered by HealthUnlocked (HU) - supports individuals affected by
leukaemia
.
Welcome to the
Leukaemia
Support Community for support of
Leukaemia
! We’re very glad you have chosen to be a part of our community. The
Leukaemia
Support community - offered by HealthUnlocked (HU) - supports individuals affected by
leukaemia
.
BrettHU
HealthUnlocked
in
Leukaemia Support
4 months ago
We're closing this forum
-
Leukaemia
Care Online Support Group -
Leukaemia
Care AML group -
Leukaemia
Care APL group -
Leukaemia
Care CLL group Helpline (available Monday - Friday, 9 am - 5 pm) Information Booklets
Leukaemia
Counselling Service WhatsApp Service Our team is dedicated to ensuring a smooth transition
-
Leukaemia
Care Online Support Group -
Leukaemia
Care AML group -
Leukaemia
Care APL group -
Leukaemia
Care CLL group Helpline (available Monday - Friday, 9 am - 5 pm) Information Booklets
Leukaemia
Counselling Service WhatsApp Service Our team is dedicated to ensuring a smooth transition
NicoleLeukaemiaCare
in
Leukaemia Support
8 months ago
On another subject …
Inspired bya post on another site I’d like to ask if anyone has high risk mutations and has NOT had a stem cell transplant and has NOT progressed to
leukaemia
?
Inspired bya post on another site I’d like to ask if anyone has high risk mutations and has NOT had a stem cell transplant and has NOT progressed to
leukaemia
?
lizzziep
in
MPN Voice
5 months ago
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As my father died 3 days after his diagnosis of Acute Myeloid
Leukaemia
I am feeling concerned about the rapid changes I am experiencing. I have known my haematologist for over 14 years as he was also my husband's consultant for his Mantel Cell Lymphoma.
As my father died 3 days after his diagnosis of Acute Myeloid
Leukaemia
I am feeling concerned about the rapid changes I am experiencing. I have known my haematologist for over 14 years as he was also my husband's consultant for his Mantel Cell Lymphoma.
16Gardinia
in
MPN Voice
3 months ago
Low vitamin d high serum ferritin
Is the high serum ferritin a sign of
leukaemia
as I have read it may be? Thanks in advance for any replies.
Is the high serum ferritin a sign of
leukaemia
as I have read it may be? Thanks in advance for any replies.
Debs4
in
CLL Support
5 months ago
Cll back after 4yrs
Hospital found lymph nodes in neck and think my
leukaemia
is back. I have been cancer free for4yrs. Has this happened to anyone else. What happens next.
Hospital found lymph nodes in neck and think my
leukaemia
is back. I have been cancer free for4yrs. Has this happened to anyone else. What happens next.
Daisy1993
in
CLL Support
8 months ago
Myelodydisplasia (?)Leukaemia
So can someone tell me if this is what CLL can turn into? and how much worse than CLL is it? Many thanks, Veronica
So can someone tell me if this is what CLL can turn into? and how much worse than CLL is it? Many thanks, Veronica
Veebeegeebee
in
CLL Support
5 months ago
A message to all community members
We want to let you know that
Leukaemia
Care will no longer be moderating this community. Over the past few years,
Leukaemia
Care has provided moderation and support on this community to the best of their ability. Unfortunately, this is no longer possible.
We want to let you know that
Leukaemia
Care will no longer be moderating this community. Over the past few years,
Leukaemia
Care has provided moderation and support on this community to the best of their ability. Unfortunately, this is no longer possible.
BrettHU
HealthUnlocked
in
Leukaemia Support
4 months ago
Chronic Myelomonocytic Leukaemia (CMML)
However, like MGUS, it is very possible that it will remain Chronic for years and at the age of 80 the likelyhood of dying from this
Leukaemia
is significantly less that dying with it. So I am not overly concerned about the future at the moment.
However, like MGUS, it is very possible that it will remain Chronic for years and at the age of 80 the likelyhood of dying from this
Leukaemia
is significantly less that dying with it. So I am not overly concerned about the future at the moment.
AyJayBass
in
PMRGCAuk
2 months ago
Struggling Financially with Leukaemia?
I was diagnosed with CLL in July 2013 and had already been registered with Macmillan in 2004 when I had bowel cancer, although at that time I didn't need much help other than problems with stoma bags and local support groups, both of which they helped me with. Financially I was okay being paid by my
I was diagnosed with CLL in July 2013 and had already been registered with Macmillan in 2004 when I had bowel cancer, although at that time I didn't need much help other than problems with stoma bags and local support groups, both of which they helped me with. Financially I was okay being paid by my
clifflee
in
CLL Support
4 months ago
Just 5% of therapies tested in animals end up as as human drugs, new study shows. CLL research has particular challenges due to the TME
CLL cells are in their dormant stage in the blood, so while
leukaemia
cancer research has the huge benefit of providing easy sampling access to tumour cells through blood sampling, assessing the impact of therapies on CLL cells removed from blood samples is misleading regarding their effectiveness.
CLL cells are in their dormant stage in the blood, so while
leukaemia
cancer research has the huge benefit of providing easy sampling access to tumour cells through blood sampling, assessing the impact of therapies on CLL cells removed from blood samples is misleading regarding their effectiveness.
AussieNeil
Partner
in
CLL Support
3 months ago
Aussies will save us all: from Oz, a molecule that can (could) treat resistant prostate cancer
"CDKI-73 is currently being investigated in Phase 2 clinical trials in patients with relapsed and therapy-resistant acute myeloid
leukaemia
, an aggressive blood cancer."
"CDKI-73 is currently being investigated in Phase 2 clinical trials in patients with relapsed and therapy-resistant acute myeloid
leukaemia
, an aggressive blood cancer."
Maxone73
in
Advanced Prostate Cancer
17 days ago
Advice welcome
He is starting to walk more after lengthy treatment for
leukaemia
. Has anyone out there any advice as to how to manage this sometimes debilitating condition? Thank you in advance
He is starting to walk more after lengthy treatment for
leukaemia
. Has anyone out there any advice as to how to manage this sometimes debilitating condition? Thank you in advance
Limpet72
in
Lung Conditions Community Forum
5 months ago
p17 deletion. Can anyone advise or cheer me up?!
I’m 79, living in UK and 18 months into being diagnosed with Chronic lymphocytic
leukaemia
(CLL) and suspected Chronic myelomonocytic
leukaemia
(CMML), I have been still at early stage and not needing treatment.
I’m 79, living in UK and 18 months into being diagnosed with Chronic lymphocytic
leukaemia
(CLL) and suspected Chronic myelomonocytic
leukaemia
(CMML), I have been still at early stage and not needing treatment.
Fogey
in
CLL Support
1 year ago
Jakafi Dosing
I just had to change from Pegasys due to too many side effects, and was put on Jakafi. My question is does 15 mg. twice a day for a woman that is 110 lbs. seem like a lot? From what I read it seems so to me. My platelets had gone down on Pegasys from over a million to 567, but with bad side effects.
I just had to change from Pegasys due to too many side effects, and was put on Jakafi. My question is does 15 mg. twice a day for a woman that is 110 lbs. seem like a lot? From what I read it seems so to me. My platelets had gone down on Pegasys from over a million to 567, but with bad side effects.
dogsandhorses
in
MPN Voice
4 days ago
Recent research re. relevance of VAF
MPN Hub summary
Impact of mutated JAK2 allele burden on the outcomes in PV and ET
of a recent article by Guglielmelli et al. durable molecular response (DMR) complete clinical and hematological response (CCHR) [i]"Increased DMR was correlated with longer duration of CCHR, reduced progression
MPN Hub summary
Impact of mutated JAK2 allele burden on the outcomes in PV and ET
of a recent article by Guglielmelli et al. durable molecular response (DMR) complete clinical and hematological response (CCHR) [i]"Increased DMR was correlated with longer duration of CCHR, reduced progression
hunter5582
in
MPN Voice
9 days ago
Recent research re. relevance of VAF
MPN Hub summary
Impact of mutated JAK2 allele burden on the outcomes in PV and ET
of a recent article by Guglielmelli et al. durable molecular response (DMR) complete clinical and hematological response (CCHR) [i]"Increased DMR was correlated with longer duration of CCHR, reduced progression
MPN Hub summary
Impact of mutated JAK2 allele burden on the outcomes in PV and ET
of a recent article by Guglielmelli et al. durable molecular response (DMR) complete clinical and hematological response (CCHR) [i]"Increased DMR was correlated with longer duration of CCHR, reduced progression
hunter5582
in
MPN Voice
9 days ago
UTIs and primary MF
I have had primary MF for 10 years and have recently commenced Momenlitinib after Ruxolitinib stopped working effectively.Over the last year I have suffered at least six UTIs and it is getting me down quite a bit. Last couple showed leucocytes present. Does anyone else experience similarly and could
I have had primary MF for 10 years and have recently commenced Momenlitinib after Ruxolitinib stopped working effectively.Over the last year I have suffered at least six UTIs and it is getting me down quite a bit. Last couple showed leucocytes present. Does anyone else experience similarly and could
Cazbolac
in
MPN Voice
11 days ago
Newly diagnosed Myelofibrosis
Hello lovely people A recent Bone Marrow has shown what I believe to be early stage Myelofibrosis. Next appt in two weeks. Has anyone got any advice on any questions I should be asking re treatment etc. I have had ET Calr for 17 years. Not quite sure what to think or feel just now. I am also being
Hello lovely people A recent Bone Marrow has shown what I believe to be early stage Myelofibrosis. Next appt in two weeks. Has anyone got any advice on any questions I should be asking re treatment etc. I have had ET Calr for 17 years. Not quite sure what to think or feel just now. I am also being
lindyloulou
in
MPN Voice
12 days ago
PV - Critical Illness insurance claim?
I was diagnosed with PV last year. I am struggling with work and feeling very anxious and realise I have a life with critical illness policy with LV but am not sure if PV is covered. It doesn't appear to be listed explicitly. LV boast that they meet the ABI guidelines for critical illness. Can anyone
I was diagnosed with PV last year. I am struggling with work and feeling very anxious and realise I have a life with critical illness policy with LV but am not sure if PV is covered. It doesn't appear to be listed explicitly. LV boast that they meet the ABI guidelines for critical illness. Can anyone
Santrix69
in
MPN Voice
13 days ago
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