My mother had a heart attack on her birthday in August 2018... then shortly after was diagnosed with CMML2.
Anyone on here have CMML2?
She is not a candidate for Stem Cell transplant due to heart function being damaged from the heart attack, they feel she would not survive the host-graft disease.
She has been on Vidaza chemo injections for almost TWO years now which i can't believe. This year her doctor bumped her to every 6 weeks (instead of 4) and 5 days (instead of 7).
Unfortunately we got the bad news on Monday that her numbers have dropped again and she is unable to get the Vidaza. Numbers of concern are;
Hemoglobin 12 (still normal but dropped)
Neutrophil % is 15.8%
Lymphocyte % is 66%
Neutrophil is 0.25
She is scheduled for a bone marrow biopsy in two weeks and then a follow up two weeks after that to discuss results and next steps/plan.
Can anyone give me any insight... is my mom's CMML2 back and is it downhill from here? I'm not ready for the rollercoaster ride... i'm a single mother and an only child and my parents are everything to me...
Is there any treatments that could be an option for mom as it seems Vidaza is no longer working...
Thanks and much appreciated!