Experiences with

Vidaza

They put together a plan for David to receive several cycles of a drug called vidaza. After three cycles, another bone marrow biopsy did not show the results the Mayo doctor had hoped for, so more Vidaza was ordered with the addition of venetoclax.

David has now completed 3 cycles of Vidaza. He had a bone marrow biopsy several weeks ago. At first we thought the results were good, that his cancer cells had been reduced sufficiently to proceed with transplant.

My husband David is receiving chemotherapy (Vidaza) to improve his blood counts. His MDS is a serious stage, described to us as "refractory anemia with excess blasts 1." His blood counts are all extremely low with an ominous increase in "monocytes."

She has been on Vidaza chemo injections for almost TWO years now which i can't believe. This year her doctor bumped her to every 6 weeks (instead of 4) and 5 days (instead of 7). Unfortunately we got the bad news on Monday that her numbers have dropped again and she is unable to get the Vidaza.

Just started Vidaza (azacitidin) given 5 x weekly as injection under the skin followed by 3 weeks off: no effect as such yet but guess its also early days. However, I am wondering if anyone with T-PLL has some advice to share as the T-PLL is so rare? I read about venetoclax with great interest.