High Dose Dexamethasone Pulse Treatment - ITP Support Assoc...

ITP Support Association

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High Dose Dexamethasone Pulse Treatment

Bassmaster57 profile image
4 Replies

Hello Everyone,

As I stated earlier, I am newly diagnosed with ITP. I see most of us have had disappointing results with various treatments. I originally had a Count of 15 with no other symptoms except petechiae on my legs. My hematologist put me on a 4 day course of DEX 40mg per day x 4 days. After 4 day treatment, my count skyrocketed to 643, 856, 774 and finally to 221 after 12 more days. Does anyone have any experience with low dose ( 1mg per day) as a long term stabilizer? Any and all comments would be greatly appreciated. thank you all in advance !

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Bassmaster57
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sharroN42 profile image
sharroN42

I am on a dose of 20mg dexamethasone every 2 weeks. Additionally, l take 2 tablets of papaya leaf juice daily. I believe it is the latter that has increased my count to 92 from 61. The dexamethasone did increase my count from 11 to 37 to 51.All the best,

Bassmaster57 profile image
Bassmaster57 in reply tosharroN42

Thank you for your input. All the best to you as well.

Itpnotforme123 profile image
Itpnotforme123

Hey what up I have been diagnosed with ITP for the last 15 years now and have been literally a guinea pig with all the treatments infusions my holistic approach etc.. and I’m on nplate once a week at the lowest dose and it stabilizes me although once it hits 200,000+ I cant get the shot and it then goes down fast to 100,000 it’s scary plus the side effects like fatigue, headaches etc.. I recently tried taking ashwanghanda which lowers your cortisol depression anxiety level etc.. has reduced the effects of the inflammation percentage of the effects in my blood has reduced somehow! Hope this helps but I tried it all prednisone, rituxan etc.. if gave more questions feel free!

Bassmaster57 profile image
Bassmaster57 in reply toItpnotforme123

Thank you for your input. I need to decide which treatment would be best for me. I guess it's going to be trial and error like the rest of us. Hope the n plate keeps working for you.

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