15 months ago I had a platelet count of zero. I was put on prednisolone and my count went up then crashed to 2. I was then given IVIg but got meningitis and a retinal bleed and my platelets crashed to 3. I was then given rituximab and my count went up then crashed to 2 I then had a splenectomy and my count went up to 593 and then crashed to 3. I was then given a course of 80mg of prednisolone tailing off over 100 days but my count crashed to 2. I was then put on Romiplostim but it has affected my liver. I am currently attending hospital 4 times a week. I live day to day and find the fear and anxiety very tiring and very draining - has anyone else gone through what I have had to face over the last 15 months?
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