feeling very frustrated.my dear friend was diagnosed w/ITP,then multiple myeloma,then PNH, and now it's aplastic anemia&she's on horse serum

[Illin]

so frustrated.anybody else have any problems getting diagnosed and feeling like doctors are shooting someone u love up with too much shit and testing too much!?

anybody?

[S38abcd]

Don't worry dear...if you lose hope how will you comfort your friend.There are many things science can do to help your friend recover.Where is your friend being treated I hope you have good doctors......It is terrible but be hopeful We all r with u....

[Illin in reply to S38abcd]

Thanku for your warm wishes...it means a lot.

[Rockette62]

My husband would be able to identify with your frustration! I am the onevwith health issues. Testing while distressing is good as it should help identify an actual diagnosis, Are you saying this one person has all these issues or these are the different illnesses being suggested? Can you find one doctor to put all this info together and work it out? Make sure your loved understands your frustration is NOT with them but with not knowing, seeingbthem go through this and not being able to fix it. Medication can affect you so you are not only ill but suffering side effects. Find small things to appreciate. The fact you can get the tests, treatment. Maybe the weather is wonderful today. That dog just wagged its tail when it saw you. It sounds silly but it teaches you that there is more than just the illness in your life.

I send the very best wished to you and your family

[S38abcd in reply to Rockette62]

you are right dear..but its hard at the initial stages when someone is suffering multiple problems....we have to be strong..

[Illin in reply to Rockette62]

These are all the different illnesses being suggested.The doctor isn't good at communicating and she jumps around with diagnosises and treatments without explaining why...or what she's planning next.My friend was released from the hospital not too long ago and she is now home and too weak to make it to her doctor's appointments for platelet transfusions,etc.My friend also has post polio syndrome and is up in her late 60's.She is frustrated and is having trouble speaking up for her rights...she is afraid of asking for second opinions...doesnt want to offend her doctor...and it is difficult because she is tired and confused too.I do not live near her...I live miles and miles away...but I am doing as much research as I can and also sending her much love and support via emails and telephone calls.Anyone have any advice or ........anything...words of wisdom and experience,suggestions?THANKYOU

[Rockette62]

💖

[tgk62]

It is difficult when being diagnosed initially. I also was diagnosed w/very high BP along with ITP. They told me to go to the ER right away, as they were afraid I'd have a stroke. I went from not having to take any medications daily, to having 6 different ones a day. I got as high as having to take 22 tablets a day for a 2 week period. It is getting better now, 6 months later. I hope it will be the same, but in a speedier manner, for your friend.

[Illin in reply to tgk62]

Thanku.