My son is 15 and has chronic itp and a diagnosis of alps blood disorder too. We are waiting for an apt. at GOS and have been for 3 months. My son has just got the disheartening results from his mock exams as we sent him to school that week with awful flu like symptoms as no one told us he could sit the exams at a later date if ill. He suffers from fatigue off and on and gets labelled as not trying hard enough. When the school raise any concerns about his tiredness, I always take him to his g.p just so it is always recorded that we do our best but his doctor says there is nothing he can do as it is a symptom. He had a drop in platelets over xmas as he came out in major bruising for no reason. How do others make their kids school understand?
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