Hi, I'm in-between treatments now and need to hold on 10 more days till my doctor's back. I had IVIG which had a very short term effect it seems and I'm having a couple of new bruises (smallish really) and a bit of blood when I'm brushing my teeth. In addition, I have allergic eczematic rush so a couple of bleeding cracks on my skin because of dry eczema. I'm wondering at what point I should be worried and when I should rush to A&E. I assume my platelets are quite low now. Many thanks
What is threatening bleeding? - ITP Support Assoc...
I have similar also bleeding from my nose when i blow it. As long as the bruises are just small and the bleeding is just a little and stops straight away i wouldnt rush to a&e. Only time i would would be heavy nose bleed or id my gums wouldnt stop or if the bruises were really big. Maybe leave a msg for your consultant and they would say whether or not they wantee ur count checked. Everyone is different. Good luck. X
tinkerbelle77 is right. bruising and small bleeding is no problem. I have even had really large bruises, recently from my knee to the tips of my toes. It went in time but some lovely colours!!!!.
I would only really be concerned if you normally bleed excessively without warning i.e a nose bleed or similar, that you cannot stop. If not, then get on with your life and don't worry excessively. In over 10 years with a count of around 10 and no medication, I have only had one BAD bleed from the nose and then I only went in after a couple of hours. Good luck.
thank you. Doctors for some reason always ask about mucusal bleeding, maybe it's an indicator if pre-disposition to internal bleed.
Hi yes my consultant is the same. He is not too hung up on the count or if I am bruising but says that I should have treatment if I have blood blisters in my mouth as this can be an indicator that I may go on to have a bleed in the intestine or gut.
blood blisters are also tricky, I do have them if I 'bite' myself when eating. E.g. now I have two - both from biting. Maybe if I have lots of them for no reason - I should rush for help. Capillaries are so fragile that every tiny damage causes bruise/blister.
it is so difficult to know when to go in isn't it? I think you're right in that my blood blisters were quite small but seemed to pop up for no reason. I am lucky that my count responds well to steroids but I hate them so much that I tend to ignore any symptoms for a couple of weeks. Also in Plymouth, I have open access to the ward and that helps as I know I can go in straight away if I need to rather than going through my GP or A&E. Hope all goes well with you and you can avoid rushing to A&E Janet
Hi I think I echo what has already been said. I currently have a count of zero. It has waxed and wained at less than 5 for about a year now. My consultant is of the view that the count is not the over riding factor. It seems while there is no serious bleeding of often things are best left alone.Ivag is a good tool but tends to have short lived benefit. I was told by my consultant that he didn't want to use without a good reason because there is a likelihood that the more often it is used the less effective it will become. In other words it is a useful tool in the armoury best not over used.
It never ceases to amaze me how different everyone's ITP treatment is, especially in different countries...With my Boston hematologists, a count under 20 definitely means some kind of treatment. I like the idea of paying just as much or more attention to symptoms. Thank you all for enlarging my knowledge of options!
I was told to watch for stomach pain, bloating or nausea as they can also mean internal bleeding (or a hundred other things).
I attend a haematologist in London and have open access to the Haematology Day Unit. I can call and go in for a blood test any time I like. And also speak to the ITP nurse. You could change doctors if you liked. I am seen at the Royal London.
I have this kind of access - can come for a blood test, but no ITP nurse and it's not easy to get a conversation with my doctor if something is going not as planned - I'd always need to wait for the next appointment.