Change of diagnosis, previously ET - Now Post ET Myleofibrosis JAK2 Negative, CAL R positive
As of today I have been diagnosed with Post ET Myleofibrosis intermediate Phase 2, JAK 2 Negative, CAL R Positive. The probability is that I ...
ET and treatmeant choices
Hi All, Was diagnosed with ET about 10 years ago and platelet count averages around 700 and have been on low dose aspirin ever since. My thou...
I have been on Interferon alpha injections ( anything between 2 and 5 days a week ) for the last 8 years. I do get flu like symptoms with int...
Hi sorry to moan, diagnosed with PV JAK2 positive last year and have now been on interferon Alpha Roferon for 5mths. Very keen to stay on Int...
Interferon alpha /babies
My partner is 35 and on interferon alpha 3 times a week , he is prv,et, jak2 pos ....
Advice please,I have ET,I take interferon alpha injections 2 times a week,tonight I took out fridge and it didn't feel cold enough,put thermo...
Nauseous with ET
Hello all,haven't been on for a while,just after advice,Et for 9 years diagnosed at 39 after stroke,had tia'also bleed in bowl,been on interf...
Milburn - Information on Radioactive Phosphate P32
I have being suffering from ET for the last 11 years. This has been controlled very successfully with Hydroxycarbamide through this period....
Hi everyone, just been put on interferonAlpha, is there anybody that can share their experiences of this drug as it seems pretty scary the si...
I am currently on interferon Alpha and have no problems with this....
Interferon alpha frequency
I have been on interferon for about 6 months. Now down to two a week....
Pegasys or interferon alpha,
Reading alot of coments about pegasys,taken weekly,my interferon i take wen,sun,i know pegasys is slow release,i have been on interferon for ...
After 3 mini strokes found out i have ET,that was 8 years ago at the age of 39,been on interferon alpha 2b since then been lucky side affects...
Hi I'm ET & jak2 positive, just on aspirin but due to start on interferon alpha injections, anyone had experience with this, good or bad?...
Pregnant with PV, JAK2+, weird family history
I did a quick search for this through the MPN Voice forums and only found a similar expectant mom thread for someone who had ET, not PV. ) I'...
Anyone had a shingles vaccination?
I have ET, jak2 neg, and am on interferon alpha injections, once per week....
Platelets 890, Hcrit 0.49, Low Iron. Treatment options?
I'm posting because I've had a search and can't seem to find many people in a similar situation. I'm only 24, reasonably fit, no other condit...
Non-PCa Prescription Drugs: Gout Meds.
Gout is an inflammatory condition associated with a problem of purine metabolism that results in crystallization of uric acid. [ 1 ] [ 2 ] Co...
Foods/Supplements-Vitamins: Vitamin A (Retinol, Retinoic Acid [RA], Beta Carotene)
This is the first in a series of reviews of the PCa literature for foods & supplements. When I began looking at studies 12 years ago, I start...
Help to boost immune system?
Hi, I started on interferon alpha came off because of side effects and now on peg interferon once a week which has eased my side effects and ...
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