Worried and need advice
Diagnosis: ET Age:41 Date: June 2018 Current platelet count: 1700, 000 Drug: Interferon ( Pegasys ) started March 2019 My platelet count is c...
HU vs Pegalated Interferon?
Hi Everyone. I'm 35 and have recently been diagnosed JAK2 positive ET....
Interferon--does ones age make a difference?
Has anyone started on interferon later in life and how did your body react?...
I am 76, Polycythaemia Vera for 9 years, taking Hydrea 3 capsules daily now....
Hi everyone I saw my haematologist yesterday for my ET. Platelet count is gradually going up....
Hep c medicine
Hello, new on here and worried about my husband who has hep c, we received a letter today that the nhs have approved interferon medication, i...
Travel tips - Pegylated Interferon
I wonder if anyone has tried Frio cooking travel wallets for travelling with interferon?...
Platelets 1200 - No Action to be taken?
ET Patient diagnosed 23 years ago, now age 46. Tried Hydroxy, Interferon, and other drugs, without long term success, due to side effects....
Pegasys struggles..any tips?
Hi All 48 and diagnosed with ET ( mpl mutation ) after a routine blood test 10+ years ago....
Absolutely different experience entirely!
Hi all,I had my new appointment with a new haematologist at a new NHS authority yesterday and the contrast to when i was first diagnosed and ...
ET and treatmeant choices
Hi All, Was diagnosed with ET about 10 years ago and platelet count averages around 700 and have been on low dose aspirin ever since. My thou...
Interferon advice please
I've had PV for eleven years and recently started on Interferon Peg. Prior to Interferon I have been on Hydroxycarbamide for six years which ...
Medications that can affect thyroid function
FYI. Izabella Wentz recently sent out an article listing the 9 medications she believes are the most common thyroid disruptors....
Treatment not working
Hello everyone, I was on Hydroxyurea for a couple of months after my platelets reached 900 and it helped at first but after a while my platel...
MF with falling Hb: what drugs to go to next?
Hi guys, I have MF, platelets fine, whites a bit high ( 23 ), Hb dropping, now 90....
Diagnosed with ET
I am 45 and was diagnosed with ET last June struggling to comes to terms with it . Only symptom l have is fatigue but feel worried all the ti...
Experience with Pegasys
Just joined MPN Voice, I was diagnosed with ET 2 years ago, recently had a more definitive diagnosis, CALRins5 ( Type 2 ), other non driver m...
Keeping Interferon cool whilst travelling
Hi all Just wondering if anyone has any tips for travelling with Interferon?...
Parotid removal and Hydroxychloroquine
I've had Sjogrens since interferon treatment 10 years ago and recently needed a troublesome parotid gland removed due to unidentified lumps a...
Allow myself to introduce myself...
In January the diagnosis was confirmed as MF and I started on a dose of hydroxycarbamide. I had issues with fatigue, brain fog, anger managem...
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