Have to decide between Hydroxycarbide or Interferon on July 4th? Cant i just keep having a Venesection every few months? I have ET
Can anyone help me chose ? I am 59yrs so have been told that I have a choice as Interferon used for younger people and Hydro used for older p...
Worried and need advice
Diagnosis: ET Age:41 Date: June 2018 Current platelet count: 1700, 000 Drug: Interferon ( Pegasys ) started March 2019 My platelet count is c...
HU vs Pegalated Interferon?
Hi Everyone. I'm 35 and have recently been diagnosed JAK2 positive ET....
Essential Thrombocythemia - Recent Diagnosis Interferon
Hello All, I was recently diagnosed with ET and have Googled the subject extensively ( as most would do ) I felt quite confident with the kno...
Hello everyone.... saw my oncologist last week, I have been given another 3 weeks off of Hydroxycarbomide ( it’s shown it is that that is giv...
CURCUMIN? – IS IT THE NEXT BEST THING...?
Post by MPN-MATE Admin » Wed Sep 25, 2019 10:29 am Hey all my MPN colleagues & friends... Thought that you might all enjoy a quick scan of th...
Inteferon and remission?
I know there’s been a lot of research on the peg interferon being successful with complete molecular remission. It has been very exciting to ...
Interferon--does ones age make a difference?
Has anyone started on interferon later in life and how did your body react?...
I was diagnosed with PV in 2016 and live in North Yorkshire
Hi I live in North Yorkshire and was diagnosed with PV in October 2016....
Aches and pains....
I'm 44, JAK2+ with ET. I generally don't suffer from symptoms apart from frustrating fatigue and have had some thromboses....
I am 76, Polycythaemia Vera for 9 years, taking Hydrea 3 capsules daily now....
Pegasys interferon shortage
Hi, Had my monthly haematology check up the other day and my consultant advised that there is a manufacturing shortage of peg interferon at t...
High sugar levels
Hi had ET for 10 years,asprin and interferon 2a had bloods done last week raised sugar levels,have to see doctor tomorrow,worried i have dry ...
ET since 2001, now anxious about changes in blood counts
I was diagnosed with ET in 2001 and, with a few ups and downs, it has mostly been stable on Hydroxycarbamide, Anagrelide and Aspirin until no...
Absolutely different experience entirely!
Hi all,I had my new appointment with a new haematologist at a new NHS authority yesterday and the contrast to when i was first diagnosed and ...
Hi everyone I saw my haematologist yesterday for my ET. Platelet count is gradually going up....
Platelets 1200 - No Action to be taken?
ET Patient diagnosed 23 years ago, now age 46. Tried Hydroxy, Interferon, and other drugs, without long term success, due to side effects....
Pegasys struggles..any tips?
Hi All 48 and diagnosed with ET ( mpl mutation ) after a routine blood test 10+ years ago....
I'm a 54 year old male who was diagnosed with Polycythaemia Vera, Exon 12 strain some 4 years ago now....
So I have now completed my first 4 weeks on Peg Interferon and am pleased to report that my platelets dropped lower than ever before 😊 My re...
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