Can't feel my feet after 30 day coma: I was... - ICUsteps

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Can't feel my feet after 30 day coma

Mernie profile image
6 Replies

I was admitted to icu with copd flair up and pneumonia I was incubated on life support and in a coma my wife worked my arms and legs everyday I still woke up with no muscle mass and totally no feeling in my feet i was trachea and sent to a respiratory rehab stayed 47 days and been home 2 weeks still no feeling in my feet I can't stand or walk despite therapy and exercise will I ever feel my feet again? Or walk ?

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Mernie profile image
Mernie
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6 Replies
Sepsur profile image
Sepsur

just persevere and who knows what will eventually work. Peripheral neuropathy is common amongst us.

Some nerve damage might be so severe that it can’t repair BUT be aware nerve repair is slow 1mm a day.

The soles of my feet were ultra sensitive, whereas I had no feeling in my toes or tops of my feet. 18 months later - I noticed they were almost normal. I still get weird sensations around my joints especially.

Most important is to set realistic goals and challenge yourself to achieve them.

Good luck and don’t despair.

Lux95 profile image
Lux95

Yes, nerve damage is common, but usually temporary. I couldn't feel the top of my right leg from hip to below the knee for a few weeks, and had severe double vision from 4th cranial nerve damage (palsy) that took a couple of months to return mostly to normal. Neither healed 100%, but both are around 90-95% (it's been just over 2 years since I was in the ICU).

Exercise as much as you can, rebuild your strength, be patient, and try not to worry. It takes time.

FamilyHistorian profile image
FamilyHistorian

we are all different in my case I had neuropathy in my legs but now 4 years later my legs are like jelly so I I have been referred to a neuro surgeon and undertaking tests.

You will you ever be the same - I am certainly a different person, I have no emotional filters, my brain doesn’t control my mouth and my humour has changed from wicked to evil. It’s not my problem if people don’t like it it’s theirs🤭

BigH63 profile image
BigH63

zHi Mernie

I agree with everyone one above. I’m still suffering from nerve damage while in ICU. A year ago, my feet still feel strange and slightly numb and cold. I have strange feelings down my left arm with radial nerve damage my stomach has a dead feeling and my buttocks have a strange wet feeling which is really annoying as it feels like I’ve got water trickling down it.

So as everyone says it’s a common thing and things will get better but by how much is the question. I’m under the spinal injuries team fir my issues and about to see another specialist soon

Good luck

Nigh

Copse77 profile image
Copse77

please don’t despair. It will take time for you to heal. Everyone is individual and responds in a different way. It’s good your wife worked on you while you were in a coma but you do lose muscle mass and have to relearn everything. In my brothers case being sat in a chair was exhausting for him but the nurses and physios did this with him as he came round from an induced coma and he left hospital after 2.5 months walking with a stick from being completely immobile. it was doubly painful for our family as our Dad was paralysed at a young age and only I could visit my brother every day as my mumWas caring for my Dad. now we are 6.5 years on my brother has returned to a good state of health he had to relearn how to swallow, how to speak, how to walk. I hope you will improve with time it does take time and everyone is different how they respond It’s not like waking from a coma is portrayed in films you don’t wake up as you were before reality is very different and it takes huge effort to do small things Wishing you all the best for your recovery

Misterpaulwood profile image
Misterpaulwood

I still can't feel my feet or right leg, I was in a induced coma for eight weeks.14 months on and have learnt to walk OK with a stick, no improvement on the feeling but I'm alive and that's not a bad trade off yo me. You adapt.

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