Coma : Hi I am brittle asthma and been intubation... - ICUsteps

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Coma

Shazie68 profile image
9 Replies

Hi I am brittle asthma and been intubation and ventilator 14 times in the last 4 year because of asthma attack I was put into a coma from 3day __25 days the last 3 life support been pity bad as was woken up and had to be but back on to the lifesupoort and was given my last rites 2x and my heart stop in on my coma I now cant sleep in the dark and have flash back and some time wake up crying any one else like this

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Shazie68 profile image
Shazie68
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9 Replies
Sepsur profile image
Sepsur

I’m sorry you are going through all this, do you have a follow up clinic with consultants or critical care outreach team? This often happens a month after discharge. If you have any contact with hospital - tell them what is going on. What you are experiencing isn’t uncommon after critical care.

Maybe this link will help you

icusteps.org/assets/files/b...

Shazie68 profile image
Shazie68 in reply toSepsur

I patient of the royal bromton in London but send report to my gp who say I suffering post drama something like that as in one coma I was dreaming of things that scare me but seen real and gp wanted me to go to a mental health to talk to them but I not mental just scare every time I had a bad attack I scare not waking up or the specialist will give up on me as had a experience of one coma after waking after they was tugging in my tube and it got stuck getting it out and I lasted 20 min before being but back under but heard the doc round my bed what was best to do and would it be kinder to make her comable as it wont be fair to keep intubation her as she may not survive before they made there mind up but was took down to surg 3 days later to have the breathing tube out incase I when in to a breathing attack and if I did they sed the will open a cut into my throat lucky I didnt ended having that but try to cope as scare of the things I experienced in my coma as scare me I am u saw a man physio but got more upset and never when back

Sepsur profile image
Sepsur in reply toShazie68

All I can say is that what I saw & heard whilst sedated & waking from coma felt very real at times. I now am pretty certain of what did go on and what was a manifestation of ICU delirium - you may need some extra help overcoming recurring dreams &trauma. I wish you well.

Copse77 profile image
Copse77 in reply toShazie68

This radio programme should help you. It’s only 14 minutes long. It explains about ICU delerium by a former patient. I watched my brother go through this and visited him daily as he was in induced coma with sepsis and flu.

bbc.co.uk/programmes/m0001jpv

There is a clinical psychologist as well as Bill who is a trustee of steps who experienced this. I could really relate to it and it made me cry 1 year on. I really hope this helps you. My brother is well now and I wish the same for you.

Best wishes.

Shazie68 profile image
Shazie68 in reply toCopse77

Thanku i listen to it but i fell asleep i willgain listening to it i will give it another listening to x

Copse77 profile image
Copse77 in reply toShazie68

Wishing you all the best for your recovery. You have experienced some traumatic events. Look after yourself.

Mijmijkey74 profile image
Mijmijkey74 in reply toCopse77

I've tried listening to that link you gave out but although it says it's playing, I can't hear it on my laptop. Is there something I must do in order to be able to hear it first? My laptops volume is up loud enough. Do I need to wear headphones to hear it?

Copse77 profile image
Copse77 in reply toMijmijkey74

I am really sorry I don’t know. It is a radio podcast so you should be able to hear it.

Shazie68 profile image
Shazie68 in reply toCopse77

Thanku x

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