shifting to the ward : Hello everyone, my daughter... - ICUsteps

ICUsteps

8,137 members2,527 posts

shifting to the ward

Nawalsaleh profile image
6 Replies

Hello everyone, my daughter hasn’t improved at all. Doctors say she’s stable even though she is not moving at all. She is only bone and skin. She is alert but doesn’t speak or swallow. She needs suctioning every hour and change position every 2 hours. Peg tube formula is the only food she is on. We will shift her to the ward tomorrow but my heart is broken, doctors don’t have any answer for her paralysis. I think they over dose her with sedatives till she became paralyzed. She’s been in induced coma for a month and off for 2 months now. I still have hope in God to cure her but I don’t know how to manage her disability and needs in the ward and at home later. I have a son with severe epilepsy and needs my help with everything. I try to be positive and hope for the best but there are many responsibilities that I cannot handle alone. Also confused about my daughter’s paralysis. I know everyone’s experience is different but I keep searching the net for people who recovered well after long paralysis. Hope you guys know anyone and tell me about it. Thanks to all of you.

Written by
Nawalsaleh profile image
Nawalsaleh
To view profiles and participate in discussions please or .
Read more about...
6 Replies
Linda4alex profile image
Linda4alex

Just trust in God, Don't give up just yet he has the power to perform miracles

Nawalsaleh profile image
Nawalsaleh in reply toLinda4alex

Thanks for your nice reply. Hope in God is the only thing we have.

All123 profile image
All123

Hi can she communicate by any chance or

Nawalsaleh profile image
Nawalsaleh in reply toAll123

Sometimes she nods her head to answer questions but not all the time.

Hanban14 profile image
Hanban14

Hi how is your daughter. I have a similar situation with mine. It was cause by over sedation too I believe. She has confirms critical il was myophady and critical illness polyneuropathy which caused full paralysis who’s is slowly returning. I hope your daughter have some improvements

Nawalsaleh profile image
Nawalsaleh in reply toHanban14

Hanban14 thanks for asking, my daughter is a little bit better. She’s conscious , moves her hands , not arms. Still can’t move legs , responds to pain. Speaks few words, but not very clear.she doesn’t support her head. Hope your daughter gets better soon. It takes time and patience.

Not what you're looking for?

You may also like...

Waking up from sedation

Hello, I have been told a few times that when sedation is turned off for my mom she opens her...

mom has been intubated for 2 weeks almost

hi guys. My mom is 58 years old and has been intubated for 13 days after a colon resection. She had...
Ashleylk91 profile image

Co-vid 19 - third week in ICU for Mum

My Mum has been in ICU ventilated, and at some points on dialysis, for 17 days now. She is off...
LAClarke profile image

I've been reading the poll about the transition from ICU to a ward, and I find I can't answer it.

I was in a room by myself in ICU because I had C Diff. One day I was told I was being moved to the...
patchworker profile image

Sedation weaning, non responsive

Hello My mom has been on a ventilator for 3 weeks and despite the odds she’s somehow maintaining...
Faithful2020 profile image

Moderation team

Rhyl1 profile image
Rhyl1Moderator
Rhyl1 profile image
Rhyl1Partner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.