Rare Disease

[Troas]

Anyone ever heard of Nutcracker Syndrome? If not ask me, I have had it. So because of that my left kidney has been removed.

[niksofly]

I saw that on the internet one day when I was searching for possible problems with my mom's kidneys. Could you give me more information, please?

[Troas in reply to niksofly]

I had been ill for so long, pain was intolerable and the bleeding caused me to have anaemia. Sometimes the blood clots were so large and I found them difficult to pass I had to have help from the paramedics rushing me into hospital just about every month. The problem was a kinked vessel that could not allow anything through and just several times a day would burst and I would bleed. I asked for another opinion from a different hospital and the Consultant knew what it was.

[niksofly in reply to Troas]

Hmmmm. How were they able to diagnose it? Was it with imaging. I'm sorry you had to go through that.

[Troas in reply to niksofly]

i had loads of tests and procedures then my new Consultant asked for a Nuclear Medicine procedure which is imaging and we then knew that I had the Nutcracker Syndrome. Since left kidney has been removed it's great to see normal coloured urine. The only prob has been that my wounds were infected so have had five sets of antibiotics and one is still leaking fluid, so the DN's were visiting everyday and now it's once a week. I had the op done on them 26th October 2016 so I did think I would be ok by now. I see the Consultant again on the 10th Jan, I'll give you an update then.