can somebody help me
doshie42 in The Children's Trust6 years ago
my son is severely disabled he is 16 and each year we are finding out more disabilities i have not met any one else whose child has the same...
I am confused about Methylcobalamin and it’s conversion
Freezeframe in Pernicious Anaemia Society5 months ago
I am taking Methylcobalamin and supplementing with adenosylcobalamin . I keep reading that Methylcobalamin converts into adenosylcobalamin b...
Newly diagnosed Endometriosis 😞
asidney in Endometriosis UK8 months ago
Hi lovely ladies
I'm new here. After years of being unwell with bloating, pain, constipation and sever fatigue and being diagnosed ME/CFS an...
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3yo undiagnosed ataxia
ritaa in Ataxia UK2 years ago
Hi, I've just joined this community. I have a 3yo daughter with global developmental delay and mild hypotonia. since she was a baby, wheneve...
Medication for night time (before day)
luna2017 in ERIC2 years ago
My son struggles with bladder control, he has no awareness & needs reminders during the day. He also produces lots of wee at night & this en...
sudoko5 in ERIC2 months ago
Hi my son has had constipation problems for years. When born he passed meconium during/right after birth. But then didn't poo for 2 days and...
Hypothyroid first result positif and second result came back negative but my 1 year old baby now is having delay
Vinns in Thyroid UK2 years ago
Hallo My son was diagnosed with congenital hypothyroid when he was born and then we did another check before he was 1 month, the result came...
update on my daughter (3yo undiagnosed ataxia) and CoQ10
I've been busy these past few weeks and only today I had the time to read some recent posts on children with ataxia in this community. They ...
Medication lies to our Brains but mine isn't fooled
scorpiodog in Tourettes Action3 years ago
Having Tourette Syndrome, ADHD, OCD, and other disorders i have over the years tried many methods and medications to help with my symptoms.
Mango1983 in Ataxia UK2 years agoPOPULAR
Hi My son is 4, and has an 'Ataxic gait', but he has no diagnosis.
He has had lots of tests (2 MRI of brain & spine, lumbar puncture, ataxia...
Nitride oxide test
juliesharp in Asthma UK community forum4 years ago
Have any other asthmatics had this test? At my last consultant appointment I did the test and scored 11. This show hardly any inflammation. ...
Help with 6 year old incontinence.
sophdon in ERIC2 years ago
Hi I'm new on here. My son who is nearly 7 has incontinence issues. He constantly leaks urine. He never 'wets himself' but over the day his ...
Scapegoat Life of a Black Sheep
scorpiodog in Tourettes Action4 years ago
The life of a Black Sheep
Growing up with undiagnosed Tourette Syndrome, ADHD, OCD, Oppositional Defiance and Sensory issues caused...
Lab Results: Amphetamines Skewing Results?
Andyb1205 in Thyroid UKa year ago
I will be following up with the Endocrinologist tomorrow, it will be our second meeting. In our first meeting he was unsure if I have a thyr...
High serum B12, High Active B12, Anaemia, Elevated Liver Enzymes (ALP & GGT)
mum2norm in Pernicious Anaemia Society2 years ago
Hi everyone, I'm posting for first time.
My son (22yrs old) is autistic, with dysmyelination (abnormal/lack of myelin). He has had high se...
AF Association is planning an 'ask the experts' section in the next newsletter.
AFAssociation1 in AF Association4 years agoPOPULAR
We are interested to hear which questions you would like to see answered - these will have to revolve around either 'AF symptom management' ...
Advice on Brother - Endocrinology Related
Hi, I wanted to get your thoughts on my brother's labs and symptoms, he's a young 17 year old. I didn't know where else to post this. It has...
Help in Newcastle Australia.
sarahpurcy in Pernicious Anaemia Societya year agoPOPULAR
My name is Sarah and I have joined this group to help my 17 month old daughter.
Her B12 is 303pmol\\L and her most recent active B12 i...
Aspergers and fibromyalgia
Bounceee in Autism Support6 years ago
I have both Aspergers (AS) and fibromyalgia, being diagnosed late in life with both and with 'severe primary fibromyalgia'. During my j...
new BH results
winallthethings in Thyroid UK3 years agoPOPULAR
Hello I’ve just had my results back and would love some input from this wonderful community. I’ve been on 75mg levo for the past 6 weeks a...
4yo undiagnosed Ataxia
Hi I'm new here. And have a 4yo son who the geneticist says has Ataxia. We are still waiting on an Ataxia gene panel results (it's been 6 mo...
A VERY BIG THANKYOU !!!
Hidden in Thyroid UK9 years ago
Thankyou for all your imput, it means so much to know we have somewhere to go when things are tough. We haven't been posting for a while be...
Congenital/Child Onset Central Hypothyroidism
Thought I’d share this.
\"Interestingly enough, clinical and biological parameters observed at diagnosis in the subgroup of CH patients with...
Anxiety about Thyroid Test Results
Andyb1205 in Thyroid UK3 years agoPOPULAR
Hi, my name is Andy and this is my first post! I'm 26 years old, was getting along quite well in my life and accepted into a good university...
Levodopa Induced Dyskinesia
grey in Parkinson's Movement5 years agoPOPULAR
This thread is extracted from another thread which was large and cumbersome to use,
tolterodine for urinary incontinence
Has anyone got any experience with tolterodine? My nearly 7year old son has been prescribed this for his incontinence. He has been taking it...
Problems with Hypo (little longer story)
ondrej41 in Thyroid UKa year agoPOPULAR
Hi, I’m 27 year old male, who is struggling with classic hypothyroid symptoms. I think I started to experience it when I was 18.
B12 Deficiency getting worse with supplementation?
waveylines in Pernicious Anaemia Society5 years agoPOPULAR
I have been supplementing with Jarrows B12 sublingual for over 16months now. In addition I use a good quality Vitamin B complex with folate...
Gaia_rising in Headway4 years agoPOPULAR
I feel horrible even asking this, because most of the time, I'm relatively functional.
Some of the time, though, I'm not, when the fatigue hi...
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