New here... Next Steps? Difficulty finding help

[Orange915618]

Hello, I'm new here. My 3 year old has had numerous different diagnoses thrown at her during her short life--born with hip dysphasia and hypotonia, has been extremely sick and in drs and hospitals more than out these past 3 years, history of asthma and unexplained stopping breathing, autism spectrum and anxiety with suspected adhd (too young to officially diagnose), and most recently reflux. There has also been a question of failure to thrive as well as SCAD and MCAD (though she was never officially followed for or diagnosed with SCAD and/or MCAD). Most recently we have discovered that she is only a partial responder to some vaccinations and that she has too many double negative t cells. We were supposed to be getting an "urgent referral to rheumatology" but a month later just got a call that they are not taking new patients and her immunologist refuses to help further. There is also a question of Pandas. Digging into her records today, I found these test results that I never even knew she had the tests done let alone ever given the test results. ALK Phos is low (140 u/l), alt is low (16 u/l), bun/creatinine ratio is high (48.15), chloride slightly high (108 mmol/L), globulin was 1.9 g/dL, decreased platelet estimate, moderate reactive lymphocytes, mcv is slightly raised at 85.1 fL, Monocyte no is high at 1,02 10*3/uL, monocytes % is high at 15.6%, neturophil no is low at 1.08, neutrophils % is low at 16.5%, platelet count is low at 180 10*3/uL, RDW is low at 11.5%, MCV is slightly high at 85.1 fL, platelet count is low at 180 10*3/UL, and RDW is low at 12.1%. HGB is high at 13, HCT is high at 39.4, absolute basophils is high at 0.12, lymphocytes are high at 44.7, reactive lympocytes were present, 11% of the lymphocytes were double negative t cells (may be gama delta whatever that means), segmented neutrophils are low at 46.6,. I am hoping that someone might be able to shed some light on all of this and provide us with the next direction to go in? I am completely lost with trying to care for her and beyond frustrated that the drs won't help! Thank you in advance!