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Experiences with
Hydroxycarbamide
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Hydroxycarbamide
If
Hydroxycarbamide
reduced cells how would they know. This is really baffling me. Can anyone make sense of this for me.
If
Hydroxycarbamide
reduced cells how would they know. This is really baffling me. Can anyone make sense of this for me.
YBSx
in
MPN Voice
1 month ago
Hydroxycarbamide numbness
I’ve been on
Hydroxycarbamide
for 10 years now for ET JAK2+. For a few years I’ve had tingling in my legs and feet. However , they don’t tingle anymore but feel numb now. Also had burning skin . I’ve literally just read that peripheral neuropathy is a side effect of HU.
I’ve been on
Hydroxycarbamide
for 10 years now for ET JAK2+. For a few years I’ve had tingling in my legs and feet. However , they don’t tingle anymore but feel numb now. Also had burning skin . I’ve literally just read that peripheral neuropathy is a side effect of HU.
130396
in
MPN Voice
1 month ago
rash on feet
anyone else have problems with itchy rash on feet whilst taking
hydroxycarbamide
?
anyone else have problems with itchy rash on feet whilst taking
hydroxycarbamide
?
HazeBlue
in
MPN Voice
3 months ago
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Hydroxycarbamide
Hello I’m taking
Hydroxycarbamide
500mg daily for the last 3 years for ET jak2 positive. Yesterday 4 of my fingernails came away from the skin bed…… so sore and painful. I have asked Doc Google who says this can be caused by long term chemotherapy medication.
Hello I’m taking
Hydroxycarbamide
500mg daily for the last 3 years for ET jak2 positive. Yesterday 4 of my fingernails came away from the skin bed…… so sore and painful. I have asked Doc Google who says this can be caused by long term chemotherapy medication.
YBSx
in
MPN Voice
5 months ago
Should I change my medication
Has anyone out there changed from
hydroxycarbamide
to Anagrelide with success.
Has anyone out there changed from
hydroxycarbamide
to Anagrelide with success.
Lilbert
in
MPN Voice
4 months ago
Lgm levels
I have ET and bren on
hydroxycarbamide
for 6 years and just been told my lgM level has increased to 2.2 any ideas about this. Info was in a letter so no explanation.
I have ET and bren on
hydroxycarbamide
for 6 years and just been told my lgM level has increased to 2.2 any ideas about this. Info was in a letter so no explanation.
Assoonas
in
MPN Voice
16 days ago
Hydroxycarbamide & eye problems
Has anyone here had problems arise with their vision after taking HU for a long time.?? I’ve got field vision loss …, been in HU over 10 years. My neuro ophthalmologist has said that Hu is known to cause problems with oeripha field vision. I now also have peripheral neuropathy - another known side
Has anyone here had problems arise with their vision after taking HU for a long time.?? I’ve got field vision loss …, been in HU over 10 years. My neuro ophthalmologist has said that Hu is known to cause problems with oeripha field vision. I now also have peripheral neuropathy - another known side
130396
in
MPN Voice
7 days ago
Hydroxycarbamide
Has anyone experienced similar feeling and could the
Hydroxycarbamide
be a possible cause after 6 years? Kind regards
Has anyone experienced similar feeling and could the
Hydroxycarbamide
be a possible cause after 6 years? Kind regards
Edinburgh1953
in
MPN Voice
5 months ago
Hydroxycarbamide side effects
I’m wondering how many of you knew that neuropathy a listed side effect of
Hydroxycarbamide
. Also bilateral field vision is a listed side effect. If anyone here has experienced these side effects I’d be grateful for your replies
I’m wondering how many of you knew that neuropathy a listed side effect of
Hydroxycarbamide
. Also bilateral field vision is a listed side effect. If anyone here has experienced these side effects I’d be grateful for your replies
130396
in
MPN Voice
1 month ago
High platelets due to ET or MF is anyone on anticoagulants such as Clexane or Heparin?
Are any of you also on
hydroxycarbamide
too?
Are any of you also on
hydroxycarbamide
too?
jointpain
in
MPN Voice
3 months ago
Gout and hydroxycarbamide
I’ve suddenly come down with gout in my big toe, it’s come out of the blue for no apparent reason. Does anyone know if there’s a connection with hydroxy which I’ve now taken for numerous years? I’m puzzled, I thought I had a healthy diet with no sugar and little alcohol. I haven’t found the way to
I’ve suddenly come down with gout in my big toe, it’s come out of the blue for no apparent reason. Does anyone know if there’s a connection with hydroxy which I’ve now taken for numerous years? I’m puzzled, I thought I had a healthy diet with no sugar and little alcohol. I haven’t found the way to
Joetcalr
in
MPN Voice
2 months ago
Hydroxicarbamide for PV - UK
Diagnosed late 2018 soon after started on
Hydroxycarbamide
+ Rivaroxyban 10mg daily. In the last year,
Hydroxycarbamide
has been increased slowly every few months. I am now taking 2000mg 4 days a week and 1500mg on 3 days a week because my platelet score is 640.
Diagnosed late 2018 soon after started on
Hydroxycarbamide
+ Rivaroxyban 10mg daily. In the last year,
Hydroxycarbamide
has been increased slowly every few months. I am now taking 2000mg 4 days a week and 1500mg on 3 days a week because my platelet score is 640.
RedEye21
in
MPN Voice
4 months ago
HU side affects
Hi all , I’m on 10 pills a week , and can anyone best vitamin for hair and nails my Dr confirmed it’s the
Hydroxycarbamide
that’s doing it ! I’m already on long term vit D and ferrous fumate one daily Thank you for any advise
Hi all , I’m on 10 pills a week , and can anyone best vitamin for hair and nails my Dr confirmed it’s the
Hydroxycarbamide
that’s doing it ! I’m already on long term vit D and ferrous fumate one daily Thank you for any advise
Birdlady2021
in
MPN Voice
3 months ago
ischaemic heart disease with E/T
hi all I’m 68 male had splenectomy in 2014 started
hydroxycarbamide
in 2015 high risk E/T and PV I’m on lots medication and 1500 mg daily
Hydroxycarbamide
I recently had a heart angiogram which shown high calcification in my main LAD heart artery moderate to severe They put me on Apixiban and atorvastatin
hi all I’m 68 male had splenectomy in 2014 started
hydroxycarbamide
in 2015 high risk E/T and PV I’m on lots medication and 1500 mg daily
Hydroxycarbamide
I recently had a heart angiogram which shown high calcification in my main LAD heart artery moderate to severe They put me on Apixiban and atorvastatin
Phil1955
in
MPN Voice
4 months ago
Insect bites
Wondering if
hydroxycarbamide
has anything to do with that. I would have thought that smart mosquitoes would stay away from my blood!! Has anyone experienced the same? Have a good day
Wondering if
hydroxycarbamide
has anything to do with that. I would have thought that smart mosquitoes would stay away from my blood!! Has anyone experienced the same? Have a good day
Cokopops
in
MPN Voice
2 months ago
Hydroxycarbamide Dose
Thank you to every one that replied with help and advice regarding my question about the dose increase , it’s always so very helpful to ask questions on here and get the answers from you all with your own experiences. I am very grateful and it’s much appreciated . I wish you all the very best on your
Thank you to every one that replied with help and advice regarding my question about the dose increase , it’s always so very helpful to ask questions on here and get the answers from you all with your own experiences. I am very grateful and it’s much appreciated . I wish you all the very best on your
Yoganana1
in
MPN Voice
5 months ago
visual field problems
Today I saw my Nuero opthalmologist who has said
Hydroxycarbamide
could be the cause of this. He said 10% can get this and as I’d been on it 10 years it should be considered now. Also it could be what is causing me to have pigments at the back of the eye.
Today I saw my Nuero opthalmologist who has said
Hydroxycarbamide
could be the cause of this. He said 10% can get this and as I’d been on it 10 years it should be considered now. Also it could be what is causing me to have pigments at the back of the eye.
130396
in
MPN Voice
1 month ago
Treatment Change, question
I'm in the process in changing my medication from
hydroxycarbamide
to Pegasys. I'm currently on both whilst still taking the
hydroxycarbamide
I am introducing the interferon at 45mg every 2 weeks, for 8 weeks, I'm into my 7th week, so far so good.
I'm in the process in changing my medication from
hydroxycarbamide
to Pegasys. I'm currently on both whilst still taking the
hydroxycarbamide
I am introducing the interferon at 45mg every 2 weeks, for 8 weeks, I'm into my 7th week, so far so good.
Swim360
in
MPN Voice
5 months ago
Hydroxycarbamide Dose
I am just wondering if anyone else has experienced Hydroxy not working as well after a time? I have been only taking it for 2 years now and all seems to have been going well until a couple of months ago when my platelets started to rise again. I have had another visit to consultant today and they are
I am just wondering if anyone else has experienced Hydroxy not working as well after a time? I have been only taking it for 2 years now and all seems to have been going well until a couple of months ago when my platelets started to rise again. I have had another visit to consultant today and they are
Yoganana1
in
MPN Voice
6 months ago
malaria
Unfortunately I cannot help although I have taken anti malaria pills in the past it was before I was on
hydroxycarbamide
Unfortunately I cannot help although I have taken anti malaria pills in the past it was before I was on
hydroxycarbamide
grandpa101
in
MPN Voice
5 months ago
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