I have just been told I am positive f... - Hughes Syndrome A...

Hughes Syndrome APS Forum

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I have just been told I am positive for this condition and there running tests to see how bad it is..

Susie20 profile image
10 Replies

I have had 3 miscarriages and I feel tired a lot of the time being a mum to a 3 year old working and I also go to college.. Advice please need my mind putting at rest I'm terrified

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Susie20 profile image
Susie20
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10 Replies
Manofmendip profile image
Manofmendip

Hello Susie

Welcome to our group. Please do not be terrified you have got over a very big hurdle and have been diagnosed; many people fight for ages to get believed and diagnosed.

Hughes Syndrome (APS) can be well managed, with appropriate anticoagulation medication and many patients lead almost normal lives. Have you been put on any medication yet?

You are among friends here and we all help each other.

Best wishes.

Dave

Susie20 profile image
Susie20

I have not started medication yet but I also have asthma what medication do they use??

dutchess profile image
dutchess in reply to Susie20

hello susie , I too was terrified after being diagnosed 7 years ago , it will get easier once you have come to terms with the diagnosis , the medication can be anything from a baby aspirin to warfarin . all depends on if you have had a clot . try not to woory too much and this site is great for sharing any concerns x

Susie20 profile image
Susie20

I don't know if I can have aspirin as i have got asthma.. Thank you :)

dutchess profile image
dutchess

have you ever had a clot

Susie20 profile image
Susie20

No thank god

dutchess profile image
dutchess

then my guess would be just an aspirin if your allowed . some people are only affected in pregnancy by APS

Susie20 profile image
Susie20

I'm not pregnant so it's not due to that... I have had 3 miscarriages that's why they tested me for it

dutchess profile image
dutchess

what i meant was , some people only have a problem problem when they are pregnant , i was diagnosed after 3 miscarriages , but i also had a clot . I am 44 now and found out when i was 37 . but had probably had it for many years . the hughes foundation website is the best place for answers as its not scary , unlike a lot of the websites x

Susie20 profile image
Susie20

My mum sister and little brother suffers with under active thyroid and I'm tested reguallary for it and that's come back normal so I'm ok with that :) x

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