Saw the rheumatolgist yesterday. She is treating me for a stroke, even though the scan didn't show up anything and she wants me to have another scan. I've had clots in my brain before although I didn't know it. She said I shouldnt have had these symptoms being on warfarin but she has recently been to an antiphospholipid conference (hooray she's getting more knowledge!!) she found out that APS people can gets strokes even when their INR is close to their range. My range is 3 - 4 and has been between 2.5 and 5.7 the last few weeks so not too low.
At this point I suggested a trip from Devon up to London perhaps might be worthwhile! Rather than seeing Prof Hughes, she wants me to see Dr Beverley Hunt, who I actually saw about 20 years ago when I used to travel up to London to see the Prof during my pregnancy! My doc has sent people to her before and says she knows all there is to know about antibodies! My anti- cardiolipins are measured at over 120 so that's quite high. She is happy to refer me so I've said yes.
Felt exhausted when got back and family and friends wanted to know how I got on. Inevitably, I had a dreadful night feeling so ill, so my poor husband got hardly any sleep and has a full day teaching today!! Still I'm making sure I rest as much as possible.
Thanks for all the support on this site. It has been such a help for me.