Stomach and Liver Pain

[Scottc]

Hello, I have APS which was fiquired out in 2015. I had several case of a a vascular necrosis and a lot of the same issues of everybody else. I am having a lot trouble with my stomach swelling which seems to be from my liver swelling. The pain got a little better once my inr was set at 3.5 to 4 but the it seems that my liver is swelling and the pain is unbearable. The doctors are not sure what causing it. Does anybody have issues with there liver and the pain? Any help would be appreciated

Thanks

Scott

[MaryF Administrator]

Hi, the first thing is, do you have a designated Hughes Syndrome/APS specialist? We have several listed on here for the UK, over under 'pinned posts' on the right hand side of this forum, these are for the UK, and our charity website, has many across the world: ghic.world/

Both yourself and your GP need the right guidance, a friend of mine, a close friend who has Hughes Syndrome/APS and a host of other things, not only had symptoms of necrosis, due to their INR being too low, but they also has this disease: hindawi.com/journals/crirh/...

Not saying you do have this, but please do make sure things are adequately checked out, we also suggest people look at their levels of D, B12, Folate, Ferritin and a full Thyroid panel.

MaryF

[Clairey25]

I get Liver pain every time my INR drops below 4.3 but no swelling. Scans always show up nothing but it is presumed to be micro clots in my Liver.