How old is the oldest with this syndr... - Hughes Syndrome A...

Hughes Syndrome APS Forum

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How old is the oldest with this syndrome on one thread?

ButterflyGy profile image
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I would like to run a thread on how old you are and when were you diagnosed with Hughes, how old were you when you developed symptoms. I am 54 years old. I have been active since I was 18. In the duration I have had 6 massive p.e. that have brought me to the point of cyanosis. I have had over 30 recorded dvt. I am in awe of all this syndromes survivors. I tip my hat to all for fighting through. I know what it takes to survive this.

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ButterflyGy
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Lure2 profile image
Lure2

Hi and welcome to our site!

First of all I should like to know if you have had a diagnose of APS and in what country do you live?

HollyHeski profile image
HollyHeskiAdministrator

Hi, welcome - as Lure2 says, have you been diagnosed with Hughes/APS?

Happy to share our experiences with you, can I ask what you require this analysis for?

Yllek profile image
Yllek

Hello

Welcome.

I was diagnosed when I was 38 and I’m 41 now. Drs date my APS / Hughes back to when I was about 22.

Were you diagnosed right back at the beginning or did the diagnosis come later? I’m sorry you’ve suffered so much with this.

Kelly 🇬🇧

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