I would like to run a thread on how old you are and when were you diagnosed with Hughes, how old were you when you developed symptoms. I am 54 years old. I have been active since I was 18. In the duration I have had 6 massive p.e. that have brought me to the point of cyanosis. I have had over 30 recorded dvt. I am in awe of all this syndromes survivors. I tip my hat to all for fighting through. I know what it takes to survive this.
How old is the oldest with this syndr... - Hughes Syndrome A...
How old is the oldest with this syndrome on one thread?
Written by
ButterflyGy
To view profiles and participate in discussions please or .
Read more about...
The ability to reply to this post has been turned off.
3 Replies
•
Hi and welcome to our site!
First of all I should like to know if you have had a diagnose of APS and in what country do you live?
HollyHeskiAdministrator
Hi, welcome - as Lure2 says, have you been diagnosed with Hughes/APS?
Happy to share our experiences with you, can I ask what you require this analysis for?
Hello
Welcome.
I was diagnosed when I was 38 and I’m 41 now. Drs date my APS / Hughes back to when I was about 22.
Were you diagnosed right back at the beginning or did the diagnosis come later? I’m sorry you’ve suffered so much with this.
Kelly 🇬🇧
The ability to reply to this post has been turned off.
Not what you're looking for?
You may also like...
The Seronegative Hughes Syndrome/APS book idea is back on
A long while back, many of you will remember that I decided to pull a book together regarding the...
One new small angle on raising awareness for Hughes Syndrome
From this point onwards, every time I am in hospital either for myself or the children, I am taking...
Anyone got any bright ideas on how to deal with oral allergy syndrome - particularly problems eating fruit?
I have Hughes, Sjorgrens, Fybromyalgia plus a few other things thrown in. I have always avoided...
Does my diagnosis of Lupus Anticoagulant mean that I have Antiphospholipid Syndrome, and is Hughes Syndrome another name for this, please?
I am male, 55 years old, and have been diagnosed as 'positive for Lupus Anticoagulant Antibody',...
Could anyone please give me some advice on hughes syndrome and the link with MS?
Hi Everyone. For the past three weeks i have been falling into things, having tremors, numbness and...