Adrenal Gland: Does anyone have any... - Hughes Syndrome A...

Hughes Syndrome APS Forum

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Adrenal Gland

jetjetjet profile image
4 Replies

Does anyone have any feed back in regards to possible problems with our blood problems and the gland and function or lack there of . I have been having some issues and things look like they could point that way . Thanks C & J

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jetjetjet
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MaryF profile image
MaryFAdministrator

Hi there, this is about Adrenal Disease in general: nadf.us/adrenal-diseases/ad... I also enclose this paper: hindawi.com/journals/crie/2... Has your medical team also checked your Thyroid function adequately? Beyond just your TSH, as at times that is also a link, if your Thyroid is struggling. I hope you feel better soon. MaryF

jetjetjet profile image
jetjetjet in reply to MaryF

Yes they just did about 4 months ago -- i am weak and fatigue is horrible, pains in calves and thighs--having to rely heavy on pain meds and don't want to - going back to PCP in about 11/2 months-setting another appointment in next few weeks with Supervising nurse - many other specialists in between so need to find cause other than i am ancient LOL

Ray46 profile image
Ray46

I've been tested for various adrenal problems, including cancers - due to presenting with very high blood pressure ("malignant hypertension" - possibly called that because of the cancer link) - and Addison's, the latter more than once (but always coming back negative). The first time I was tested for Addison's was after a routine rheumatology appointment, something in what I said must have pointed towards it as a differential, but at that point she just told me she wanted to test for "another autoimmune problem".

I think that last thing is the key - autoimmunes often occur together, seems once your immune system starts misfiring it tends to be at multiple targets - Addisons co-occurs with APS rather than being linked to it (other than being autoimmune). It is rare, and also can be difficult to diagnose, particularly atypical ones.

jetjetjet profile image
jetjetjet in reply to Ray46

Hi Ray what were your symptoms in regards to the Adrenal problems .and were the tests blood or just what was involved ??

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