Hydroxychloroquine made so sick I had to stop confused why could I take it before & now I can’t

[designer16]

I had plaquenil compounded, pure hydroxychloroquine & rice flour. It made my muscles & nerves work better, but I had numbness & pins & needles in my arms & legs, severe pain over my left flank, blurred vision, & headache. After reading more about I stopped the medication. I am confused, Dr Schofield gave me 10 of the same thing & I had none of these symptoms. Why am I having problems with the ones I had compounded? I asked the pharmacist & really didn’t get a answer. Trying to get in touch with Dr. Schofield but unsuccessful so far. Anyone! Designer16

[lupus-support1 Administrator]

You may be interested in: Hydroxychloroquine in Lupus: Strategies to Minimize Ocular Toxicity in LUpus Patients Understanding & Support (LUPUS):

healthunlocked.com/lupus-su...

[KellyInTexas Administrator]

I’ll find out soon in oct and let you know. I am suspecting it’s diwn to mast cell issues. She gave you ones that did not activate them.

[MaryF Administrator]

I hope you get the answer as soon as possible, do let us know what the doctor's opinion is. I can't take Plaquenil, in fact nearly all drugs, due to my mix of disease, however my daughter appears ok on it. MaryF

[daisyd]

Hydroxychoroquine placqunil must be from zenitiva as the other makes are not the same, they have other fillers

I know you have to be really careful about vision problems hope you feel Better soon

[KellyInTexas Administrator in reply to daisyd]

We don’t have the company, “Zentiva” in the US. I’ve gone to my chemist here ( what we call pharmacist) and together we’ve researched this.

[designer16 in reply to KellyInTexas]

Hi Kelly I live in California. I took the compounded plaquenil or really hydroxychloroquine from Colorado with none of these side effects. When I had it compounded here in California is where I had the problems. It was pure with rice flour. Could the hydroxychloroquine be different depending on the manufacture? Or is it coming from China & India & they produce it different. I tried to get this questionanswered but nobody would answer it. The pharmacy I went to said their supplier tests everything to make sure it is the right strength of . Any ideas Designer16

[SqueakMouse]

Hello there!😋. I'm so sorry for all the health challenges you're going through; as a fellow APS/MCAD patient, I can empathize😳. I just wanted to ask you a quick clarifying question, in hopes of providing you with the most helpful information as quickly as possible😉. When you say you can't reach Dr. Schofield, are you aware of her updated contact information since she opened her new practice? If not, just let me know--I'd be happy to provide you with the most current details😁 Meanwhile, best wishes to you for a speedy recovery from that unfortunate medication interaction, and an equally speedy discovery of a formulary that agrees well with your system😍