Meet and greet..: Does anyone know of... - Hughes Syndrome A...

Hughes Syndrome APS Forum

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Meet and greet..

Rosiek90 profile image
6 Replies

Does anyone know of any APS/ Hughes syndrome meet and greets in the UK?

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Rosiek90 profile image
Rosiek90
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6 Replies
Manofmendip profile image
Manofmendip

We tried to get an APS support group started in Bath but it died a death after about a year.

Dave

Rosiek90 profile image
Rosiek90 in reply to Manofmendip

That's a shame!

HollyHeski profile image
HollyHeskiAdministrator

Occasionally I see people on here get together when they find out they live together.

For me, this forum has been great.

Post where you are and maybe others in your area will hopefully come forward.

Manofmendip profile image
Manofmendip in reply to HollyHeski

Hi Holly

We had a chap called Tim, used to come from Exmouth to our Bath group but the group folded as sometimes we might have 6 there and another time, 1 of us!

Dave

HollyHeski profile image
HollyHeskiAdministrator in reply to Manofmendip

Thanks - maybe Tim will come forward...

MaryF profile image
MaryFAdministrator

I think in the future physical groups, based on geographical location may emerge, I certainly have plans for one in East Anglia/Suffolk, at some point in time. MaryF

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