MRI scan: I have suffered a stroke and... - Hughes Syndrome A...

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MRI scan

Tim_Thorpe profile image
8 Replies

I have suffered a stroke and mini strokes and have aps syndrome and lupus like syndrome should you be given an MRI test once a year ??

My stroke was in 2011 had an MRI in 2013 but just had a new MRI after an operation in sept which showed up micro clots since last MRI in 2013 !

Should I have been having MRI scan once a year any way ??

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Tim_Thorpe
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8 Replies
MaryF profile image
MaryFAdministrator

I guess the decision rests with your consultant and particularly if you have any new symptoms? Sorry to not be clearer. MaryF

Sara_A profile image
Sara_A

I think u would only have an mri if u were symptomatic probably unfortunately to do with cost as mri scans are not cheap!

Tucson profile image
Tucson

I've had two strokes and two scans since 2011, so not annually no.

prj789 profile image
prj789

My journey with a diagnosis of APS began with some TIA's back in 2002 and I also have had many micro clots since that time. My doctor has done MRI's each year for a few years now and at my last visit in November he asked me if I wanted to continue to get them and I asked him if it would change my treatment and he said it wouldn't so at this time I am discontinuing getting them annually.

Tim_Thorpe profile image
Tim_Thorpe in reply to prj789

Where do you live are you in London and what hospital treats you ?

Regards Tim 👍

prj789 profile image
prj789

I am in Texas in the USA. Wish I were in London.

Tim_Thorpe profile image
Tim_Thorpe in reply to prj789

I'm treated at st Thomas by prof hunt and her team 😊

Prof Hughes is here too he is the prof who discovered APS

All the best Tim 👍

prj789 profile image
prj789

You are very fortunate and I'm thankful for people like you and others who share your knowledge from Dr Hughes and his colleagues who research APS.

Many regards to you!!

Jan

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