Advice please🙂

[Gilliansimba]

Hi everyone can anyone explain plaswvwhat a weak positive blood test is for antiphospholipid antibodies means, I have it myself and I have a family history,,but this has just came back in my sons blood results, has to be repeated in 12 weeks?

[Manofmendip]

Hi

If his test is still positive in 12 weeks time then that would be a confirmed diagnosis of APS.

However, some people are what is called seronegative APS, which means that they test negative but the clinical symptoms indicate APS.

Let us know how he gets on.

Dave

[MaryF Administrator]

It is very important to have all the tests done, and at least something has shown up, however as advised by my co administrators sero negative does exist, and his medical history and symptoms must also be taken into account, and of course a trip to the correct specialist, as you will be aware we have a list on the right hand side of our forum. MaryF

[Gilliansimba in reply to MaryF]

Thanks Mary, how do I go on the right hand side of the forum I've been clicking on everything to no avail.

[MaryF Administrator in reply to Gilliansimba]

Here you go, a pinned post from the right hand side: healthunlocked.com/hughes-s...

MaryF

[Tbunny1]

My hematologist said I had the highest positive he had ever seen, but did not know of a correlation. Any positive is a diagnosis, he said, regardless of how low or high that test comes back. Both of my younger brother have apps as well, and we all test 'highly' positive for IgM. Perhaps your sons doc just want to make sure it wasn't a lab error or a false positive to repeat the test, but it is my understanding that any positive is cause for diagnosis and treatment, and certainly in light of a family history of this insipid disease.

[Bacardibabe76]

You are right, LA is either positive or negative and the other two tests have ranges.

[Lure2 in reply to Bacardibabe76]

Hi Bacardibabe,

When I took Lupus Anticoagulant test, before I was put on Warfarin, my tests always had different ranges like the other two bloodtests to diagnose Hughes Syndrome (APS).

Kerstin in Stockholm

[Gilliansimba]

Thankyou very much for all of your replys I really appreciate this I really don't want him to suffer the way I have for many years & still am, I really wish gps knew more but at least I see a rheamtologist now. My son does have many symptoms off aps unfortunately 😢Xx God bless you all xx

[Gilliansimba]

I went to the gp with him last lwednesday & to see the same doctor on Thursday with my older son, the face she pulled when I walked in again was not very nice lol,it was like she didn't like me think because I knew more than she did about this condition! Oh well I'll keep on going keep fighting it's too easy to give up. 😀