Hi I am 53 been with APS for 21 years , trying to cope with whatever walks in front of me but somethings are a little too complicated,
if your passing by say Hi
New to here : Hi I am 53 been with APS... - Hughes Syndrome A...
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Mimi-Hope26
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MaryFAdministrator
Hello, hope all is well with you! MaryF
Hi, welcome to the forum. I hope you're managed well by good doctors! X
Welcome Mimi-Hope26 .Everybody is so helpful on here so get get chatting and tell us about yourself
I was diagnosed 15 years ago, and, since gone gluten-free, have been mostly symptom-free. Happy Thanksgiving. ( i'm assuming from your post that you are a fellow ,,Yank.)
Welcome I now u will find a lot of nice people with lots of knowledge. Yeah some days are definitely worse then others and we just have to take whats coming and move on. If u are an American, Happy Thanksgiving!
Where are you from
I live in the U.K. I have been on warfarin for 20yeara suddenly my body has changed with it and it's frightening my INR won't increase and I came get rid of my clot
Also I am epileptic since July 2016 !!!
Wow - sorry to hear that have you tried another type of warfarin . I take Jantoven it is generic to warfarin sodium, but with me the inert ingredients can make a difference in how my body deals with it . -I am an APS triple positive and have a total of 27 diagnosed health problems and take9 different meds that total 27 pills a day and that would include the Jantoven. So i have to watch that the pharmacy doesn't change any of my meds with out a green label on it {this is to alert me that there is a change in the med } and do i want it .So maybe that might work for you ?? just a guess but worth a try or ask your Pharmacist . Let me know if it works
Hi! Mimi-hope26. I like your terminology I have two that I use when referencing life with APS's: gotta play the hand you have been dealt, and one I stole from Pearl Jam's song Pendulum, I think that song plays perfectly to life with APS my favorite verse that I use is: "Understand what we don't know, this might pass, thos might last, this may grow, easy come, easy go, easy left me a long time ago". It should be our group song as it describes our lives withAPS. I don't know the music u like but check it out on Utube. Could he pur theme song. Some may hear it an think it's depressing but I find it a good way to explain the way my life is now in away that others can understand. Should be our theme song. It makes me feel more understood as nobody who does not live in out shoes can sort of get a grip of life as we know it! I hope u are doing well. I just had to throw that out there as it does help me when im down and it does explain the way we live our lives, moment to moment. I like ur take what walks in front of u. Stay strong! 
