Why do we just get brushed off by som... - Hughes Syndrome A...

Hughes Syndrome APS Forum

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Why do we just get brushed off by some medical professionals.

dar58 profile image
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A  couple weeks ago I was so exhausted, feeling unwell, sleeping constantly. I was diagnosed with Epstein Barr Mono. Last evening I started getting bad dizzy spells, not that the room was spinning but very lightheaded and felt I would pass out. I went to bed, and could not sleep for the life of me, except for a few minutes and then woke up drenched in sweat. That happened twice. Then around 2am, my right arm started paining me, from the bone in the back of the shoulder, (shoulder blade), through the shoulder and down to the fingers. I did not do anything to strain it as I really have not been very mobile. My hubby brought me to the new ER that opened in our town. I was shocked to see only 1 other patient there. I went to triage, they took my vitals, asked questions, and while there the dizziness came back, the nurse said well your ok, you are sitting. I went to a room, a few minutes later the DR came in and said I think this is all from the virus, I told him I am worried because these are new symptoms and I have had clots in my aorta before. He said you are on coumadin, so you won't clot. I told him, I have clotted twice while on coumadin and had vascular surgery. He blew it off, said I think its virus related, no blood work, no monitor just a prescription for lidocaine patches for the pain. Just before I left the nurse said your papers are being printed, I signed, she handed me mine and we left. We got into the car and on the 1st page it stated while being triaged your blood pressure was extremely high, please follow up with your physician.  Are you serious?? They never re-checked my vitals before I left, no lab work..unbelievable..just brushed off. What is wrong with some of our medical practitioners now adays. Why are they so lackadaisical? I hate going to the ER at the hospital, so much medically has been going on for so long and everything is with merit but yet I feel like they look at me like a frequent flyer. !! So, for now, I am sitting home and waiting to see if this stops or persists.

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dar58 profile image
dar58
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Debbweb01 profile image
Debbweb01

Omg just had same experience DAR! I think we must travel to England and risk the flight and blood clots! Cuz even here in NYC THEYRE BLOODY EGYTS!!! I just don't know what to do anymore! The Mayo Clinic??? I think in Baltimore! Ing this is crazy!!! This is America and Mr. Obama, I won't even give him the respect of calling him President Obama, sit in his big White House and watches the middle class suffer! Hillary unfortunately will be out me next President and she'll mess up even more! I loved Bill Clinton, but she's a liar like all the American doctors! Godspeed Darlene and regards to ur family!!!

daisyd profile image
daisyd

Gosh I would go straight back to A&E if you are still having pain or at least speak to a Doctor today, it's obvious to me that you need further tests, hope you feel better soon  

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