I requested an earlier than June follow up appointment with my specialist to be given an appointment with the Lupus Nurse....I don't have Lupus...i am primary APS what should I expect?!
What does the Lupus Nurse do at guys ... - Hughes Syndrome A...
What does the Lupus Nurse do at guys and St Thomas ..? I have been given appointment with her instead of specialist..? I don't have Lupus?!
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loppylou68
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MaryFAdministrator
Probably, the nurse will also be well up to speed with Hughes Syndrome/APS, however if you are not happy with the way your appointment has been changed, I suggest you ring up and voice that. MaryF
Think I'm going to have to......London Bridge is an expensive trial to get to as it is.....very early in the morning......I don't want to waste their time or mine....and not sure how I'm going to feel the day after the infusion as right now.....feeling so week and wooly....
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