Lupron Depot: Hi! Anyone with APS... - Hughes Syndrome A...

Hughes Syndrome APS Forum

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Lupron Depot

Fire_fly profile image
6 Replies

Hi! Anyone with APS taking the drug Lupron Depot to treat their endometriosis/adenomyosis. I would like to know your personal experience as my obgyn has recommended the drug for this purpose.

Thanks!!!

Fire_fly

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Fire_fly
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MaryF profile image
MaryFAdministrator

I have no experience of using this drug, however your Hughes Syndrome/APS specialist must be in the loop with this as well as your obstetric/Gyn, it is important that they talk to each other rather than treat you separately. MaryF

Yissica profile image
Yissica

Lupron depot is usually advised for endometriosis rather than adenomyosis.

Have a look at the following website for info:

endofacts.com

They say that you must not use the "add-back Lupron depot" if you have any form of clotting disorder.

My gynae only recommended an Oral progesterone contraceptive or Mirena coil as being safe for APS patients with adenomyosis this month. (yes I have it too) or of course a hysterectomy (which has its own risks esp, if you are on warfarin.

You need to discuss this with your APS consultant first.

Hope this helps

Mommy2 profile image
Mommy2

Hi, have you since taken the Lupron shot? Did you experience any side effects? Thanks

Fire_fly profile image
Fire_fly in reply to Mommy2

Hi! After doing some research I decided not take take the Lupron shots, and the Merina coil was definitely not an option as I had one previously inserted and it migrated and punctured my cervix and had to have it surgically removed. Therefore I decided to have the Endometrial Ablation procedure. I had the procedure done under general anesthetic in October and it has so far reduced my period significantly. It took a bit longer than expected to recover from the surgery - light bleeding and cramping for three weeks - then an bright yellow discharged - but it eventually stopped. My period is more of a 'regular' period now after the procedure. I sure hope it remains as such up until menopause.

Mommy2 profile image
Mommy2 in reply to Fire_fly

Thank you. I'm also scheduled for an ablation, endo excision and tubal removal. My doc wants to give me Lupron after surgery too. I guess I'll have to do more research into why. I tried an IUD and progesterone and my body reacted poorly. I'm happy to hear the ablation worked for you!

Fire_fly profile image
Fire_fly in reply to Mommy2

I hope the procedures work for you as well! Wishing you a speedy recovery!

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