Absent from forum: Hi all at last I am... - Hughes Syndrome A...

Hughes Syndrome APS Forum

10,354 members10,542 posts

Absent from forum

Dottilind profile image
3 Replies

Hi all at last I am back on the forum I love, without your help and gidance I have been a mess. I cleared out my pc and forgot to save certain web sites so lost this one. But back i am and here to stay. Went to dr yesterday for inr and it had jumped from 1.9 to 3.1 which for me was a shock. I had to take a dose of 3.5 everyday except Sunday which was 4mg. They told me to take same dosge and then 4 again but i refused to take higher dosage as witrh the bleed I had once before and had to be hospitalised for a week to get inr down from 7.6 to 2.5. They did not argue with mw, do you think i did right thing. Still nervous of this drug and been on it since March.

Written by
Dottilind profile image
Dottilind
To view profiles and participate in discussions please or .
3 Replies
MaryF profile image
MaryFAdministrator

Hi, did you have a different user name last time around? I can't personally advise you on your INR and your anticoagulants, but it does sound like you GP is listening, it is about real team work with you, the GP and whichever consultant you have. The INR all over the place is a common problem that members discuss on here, I am sure several will chip in. MaryF

Manofmendip profile image
Manofmendip

Hi

I fully agree with what my colleagues have said.

Best wishes.

Dave

Lure2 profile image
Lure2

Hi, Do you have APS? Who is treating you at present?

Best wishes from Kerstin in Stockholm

You may also like...

Distressing call from rheumatology clinic

I had a very distressing call from a doctor at the clinic this morning. I had rung the help line to...

A Big thank you to Wittij from this site

I had my aorta valve replaced and thanks to Wiitij's suggestion, I gave my surgeons in writing, the...

Summary from Kings Hospital

I've had my appointment at Kings re my low heart rate. They were fantastic!!! I've to have loads of

Anyone gone from warfarin to xarelto and back to warfarin?

I thought my inr must be too high but found to be only 2.7 or under 3. I do well when inr is...

Bruising after kick from horse

Hughes Syndrome and take warfarin (INR 3.5 - 4.5) and aspirin. I previously had a DVT on this leg....