Stabbing pain.APS positive

[Hotelfanatic]

Hi all I just wanted to know do any of you suffer with very bad trapped wind and get like a real bad stabbing pain under your left breast,I have stomach issues but the pain is really bad and it's right under left breast kinda at the side and kinda in my back too .It's really hard to work with it.I always stress because of the clots , should I be worried,I'm on warfarin and my last INR was grand.Thanks if anyone has any ideas .

[lupus-support1 Administrator]

Sorry to read you are in pain.

Please go to see your doctor, who is the only person who can diagnose your condition. We are not doctors and no one should rely on forums or Dr Google!

Please let us know how you get on.

With good wishes,

Ros

[Hotelfanatic in reply to lupus-support1]

🤣am well aware your all not doctor's just wondering does anyone get symptoms like that,there is a whole range of symptoms with APS.Unfortunatly it's not that easy ,and I've been a couple of times with same problemJust told it's gastric,and I'd be sitting in hospital for hours and hours.Was just looking for info is all ,if continues or gets worse I will be heading to the doctor.Thank you .

[Lure2 in reply to Hotelfanatic]

I can only say that it is very important that you have got a Specialist of APS who works with autoimmun illnesses like APS. I have read what you have written and I suggest you read about APS as there is a lot of symptoms from several organs. So few Doctors know about our illness.

Live in Sweden and am triple positive with high titres and struggle to keep my INR at the correct level (3.5 - 4.0) which is important to do to avoid emboli and micro clots.

Take care of yourself and good luck!

[Pooky7]

hi. Yes. Get checked out by Dr If all ok. Ask if it could be intercostal/scapular muscle pain. I get muscle spasms in the same location that radiates from chest to under the scapular. It freaks me out sometimes, as it feels like my heart. BUT you need to rule out everything 1st as I am not a dr. I do get this muscle spasm more if I am under stress. I use techniques to help. The biggest thing is to talk to your dr. You know your body best, write down your symptoms and concerns And please don’t worry about clots all the time. Hugs to you.

[Gimleygirl]

Hi, if it's under the breasts it could be Costochondritis, probably spelt that wrong. It's inflammation on the chest wall and normally stress related. I hadn't had it for a few years after changing jobs and then got diagnosed with aps and with stress of appointments pain came back. Go get checked out as they will make sure it isn't anything else.

[soul22]

Hi nice to meet you

Yes mine trapped wind hard breathe rarely get it now on right foods drinks.

I saw GP etc gaviscon advanced GP prescribed once had test for other things rubbing release it can be extremely painful

[Hotelfanatic in reply to soul22]

Ah thanks for the reply,it puts my mind at ease when I hear of others having it.Its actually much better today thank God.xx

[soul22]

Your welcome 🤗 that's great I remember my husband thought heart problem

[Capricorn1965]

Sorry to hear you are having this stabbing pain and stomach issues. Unfortunately, there seems to be a whole range of different symptoms w APS. I have not had any of those symptoms and I was diagnosed w APS 4 years ago. Hope you get some good advice on this site w all our helpful people and that you can find a good doctor(s). 😊

[LindaMorrell]

hi all great advise from all these comments. You are not allowed ant acids if on warfarin, though I do know Gasicon is great for wind. I have had similar very disconcerting

Not because if this but I had mitral valve replaced. At one point after surgery fluid under the heart caused similar pain making breathing very difficult. Heart check up good idea

When I used to experience such pain I would try my best to relax if it was wind the wind used to find it’s way out eventually. Yes scary. Yes like a mine field

Good luck hope you find a hood specialist

[LindaMorrell in reply to LindaMorrell]

Good specialists

[myarabella]

You may need to go to the emergency room. That is where your heart is.