I saw a Allergist yesterday. Unbelievable, the only dr. I found in the United States to try to help me. She listened to everything I had to say and she believed me. She had some answers, to why i felt so much pain after a blood transfusion, bad bug bite, etc... But guess what she trained in Europe & just attended an APS conference in Europe. She wants to do a lot of blood test I have never had. She also said she was told by a rheumatologist that APS comes from somewhere. That intrigued my interest so I started researching & came across 2 articles about Igg antibodies & how they are related to true food allergies. They said if you knew what you were allergic to you could control the flare ups we experience & feel better. What do you think? Designer16
Igg testing ---food allergies. Does a... - Hughes Syndrome A...
Igg testing ---food allergies. Does anyone know about this. Is there different Igg antibodies? I searched but was unable to find that info.
It's great you have found someone to listen and help you.
Elevated IgG antibodies are linked to several antibodies in APS including anticardiolipin and B2GP1. Perhaps they are also in foods which would mean that avoiding them may be helpful. Sounds very interesting. Please let us know how you get on. Many of us are searching for answers.
I have had allergies my entire life and suffer from chronic urticaria as well as APS. I was put on an elimination diet for a year as a child to try an identify what I'm allergic too, with no result. My immunologist says we have an autoimmune disease and allergies are likely to play a role. Antihistamines are the only thing that works for me and I have to rotate drugs to get relief after a while.
I'm thinking of trialling a gluten free diet. There is a medical basis to a APS patient avoiding gluten in the diet. Antiphospolipid syndrome (APS) has Genetically been linked to Phenotype DR53-DR7. Which is also common with celiac disease and Graves' disease. Celiac disease treatment is a gluten free diet and Graves' disease involves the thyroid.
Good luck.
Hi-I went on many websites, but here is a couple I booked marked -sciencebasedmedicine.org---greatplainslaboratory.com---meridian valley lab.com. I guess in UK it's called a York test. There is a lot of information on defincency. Hope it helps. I have so many allergies, to control the ones I can will be helpful. Designer16
I am in a strange position. My IGg cardiolipin antibodies were sky high when I was first diagnosed, the other rheumatoid factors were moderately elevated, and I was anemic wth low hemaglobin and hematocrit, ( which had been consistently low since age 4 regardless of diet and supplements.)
Then I went gluten free. Within 6 months all the antibody levels turned to normal,except for that IGg. The anemia disappeared and I noted with great delight that I could now proudly breeze by places on familiar hiking trail ascents where I ( even in my 20s!) I once had to lean over and gasp for a bit.
But now, with the American transition to digital records, all that positive blood work has been thrown out! And my blood work currently is so " boring" ( as the recent hematologist described it) that they question if I have, or ever had, APLS!
But yes, a strong Amen Sisters! from me on the positive corrolation between food allergies and APLS!!
" They said if you knew what you were allergic to you could control the flare ups we experience & feel better. What do you think? Designer16"
I AGREE. Sorry for the cap..