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Hughes Syndrome APS Forum

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Hi all, I am new to all this and need your experience. I am going away end of Jan for just a week. But....it is abroad and a 4 1/2 hr

loublou profile image
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Flight. Am I ok on just my 1 asprin or should I look at an alternative?

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loublou
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Manofmendip profile image
Manofmendip

Hi.

Do you have APS (Hughes Syndrome)? If so, who is managing your condition and where are you from.

We are not medical professionals on here and cannot give you advice on medication, I'm afraid but if you can provide us with the above information we may be able to point you in the right direction to get the advice that you need.

Dave

MaryF profile image
MaryFAdministrator

I second what Dave is saying here, please provide more detail, and best wishes. MaryF x

Hi Loublou

A lot depends on what treatment you are already taking for your APS - please have a look at our charity's fact sheet from our website: hughes-syndrome.org/resourc....

1fnd profile image
1fnd

I travel quite a bit for work and it does effect my INR. Mine usually goes down, but that may just be me. I would definitely suggest discussing with your doctor several things before you leave. I am from the US so just in case I need my INR checked I have a hand written prescription with me -which I easily used on our holiday through the onboard cruise medical dept. When I flew to the UK a few months ago it was of course a very long flight which I made sure I got up and walked around every so often. I did have to take my safety net pill* on my way home but I had done a lot. [*I take a very small dose (5mg -any more than that and it makes my symptoms worse instead of better) of viagra for vesospasms which helps.] This is just my personal experience and I have SN-APS. I guess what I hope to convey is this illness does complicate things a bit so talk to your doctor. However, I also hope you get out and go enjoy the world however and whenever you can.

But most of all... Relax and have Fun!!!

MaryF profile image
MaryFAdministrator in reply to1fnd

Thanks for writing out your own experience, we also have a page on travel advice on the charity website: hughes-syndrome.org/self-he... MaryF x

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