I have been diagnosed with APS, but when I get Drs. that disagree with this diagnosis, they put down hypersomnlence, sometimes I do get very sleepy, sometimes I have altered states of consiousness where I take a nap and then mentally wake,ie, I can hear what,s going on around me but cannot move,this happens equally in summer and winter, however, the funny turrns that I have a lot which I have had today, incredibly sleepy and wake with pins and needles or numbness in arms and hands, I believe this happens a lot more in winter, I used to put it down to the cold, but am making concious efforts to keep warm all the time and am wondering if this could be a vitimin D deficiancy. How would I find out?
I have noticed that some of you take ... - Hughes Syndrome A...
I have noticed that some of you take high doses of vitamin D, is it because of symptoms like SAD?

Written by

donnabrain
To view profiles and participate in discussions please or .
Read more about...
4 Replies
•
The symptoms you describe are very familiar with me however I have them all year round . I'm on a high doseage vitamin D tablet as my levels were low, this is common in APS and other auto immune conditions.
thanks
Hi, donnabrain. Recently in the Gluten Summit, Prof. Yehuda Shoenfeld said that vitamin D may prevent cardiovascular incidents in patients with APS, as a preventive action. However would be important to have the concept of APS specialist.
thanks, got appt in January,will discuss it then
Not what you're looking for?
You may also like...
Does anyone have itchy skin/small blisters?
Hi all - does anyone else have small nodules on the skin at the top of arms and thighs - they can...
Dizzy/light headed after warfarin dosing anyone?
Although my INRs have been good. I find that sometimes after I take my warfarin this happens. I am...
High APLs but no history of blood clots? Does that mean I still have APS?
Hi. I am a 22-year-old woman whose endocrinologist had two blood tests done 8 weeks apart and both...
Is it possible I still have hughes just because 1 doctor tells me I dont????
I went to a immunologist/rhemologist. Who told me it does not sound as if I have aps as I have 1...
My inr is on target of 3 for the first time but I have had bad headaches for a week. It
It feels like my head is being squeezed and i feel dizzy and Sometimes nauseous. I was 2.9 for a...