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Hughes Syndrome APS Forum

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I have noticed that some of you take high doses of vitamin D, is it because of symptoms like SAD?

donnabrain profile image
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I have been diagnosed with APS, but when I get Drs. that disagree with this diagnosis, they put down hypersomnlence, sometimes I do get very sleepy, sometimes I have altered states of consiousness where I take a nap and then mentally wake,ie, I can hear what,s going on around me but cannot move,this happens equally in summer and winter, however, the funny turrns that I have a lot which I have had today, incredibly sleepy and wake with pins and needles or numbness in arms and hands, I believe this happens a lot more in winter, I used to put it down to the cold, but am making concious efforts to keep warm all the time and am wondering if this could be a vitimin D deficiancy. How would I find out?

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donnabrain
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TJSTICKYBLOOD profile image
TJSTICKYBLOOD

The symptoms you describe are very familiar with me however I have them all year round . I'm on a high doseage vitamin D tablet as my levels were low, this is common in APS and other auto immune conditions.

donnabrain profile image
donnabrain

thanks

engineeriso profile image
engineeriso

Hi, donnabrain. Recently in the Gluten Summit, Prof. Yehuda Shoenfeld said that vitamin D may prevent cardiovascular incidents in patients with APS, as a preventive action. However would be important to have the concept of APS specialist.

donnabrain profile image
donnabrain

thanks, got appt in January,will discuss it then

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