Sticky Blood-Hughes Syndrome Support
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I have noticed that some of you take high doses of vitamin D, is it because of symptoms like SAD?

I have been diagnosed with APS, but when I get Drs. that disagree with this diagnosis, they put down hypersomnlence, sometimes I do get very sleepy, sometimes I have altered states of consiousness where I take a nap and then mentally wake,ie, I can hear what,s going on around me but cannot move,this happens equally in summer and winter, however, the funny turrns that I have a lot which I have had today, incredibly sleepy and wake with pins and needles or numbness in arms and hands, I believe this happens a lot more in winter, I used to put it down to the cold, but am making concious efforts to keep warm all the time and am wondering if this could be a vitimin D deficiancy. How would I find out?

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Im no Doctor but I don't think that what your describing would be a Vit D deficiency. You could ask your GP to do blood tests if you wanted to know if you had a deficiency. Having said that it is a good idea to take Vit D anyway with APS as it acts as an anti-inflammatory not because of SAD (Seasonal Affective Disorder).

It sounds to me as if you need to have a good assessment with an APS specialist so they can make sure you are on the right treatment for your APS.

You can find a list of specialists on the right of this page. I do hope things improve for you soon.

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The symptoms you describe are very familiar with me however I have them all year round . I'm on a high doseage vitamin D tablet as my levels were low, this is common in APS and other auto immune conditions.

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thanks

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Hi, donnabrain. Recently in the Gluten Summit, Prof. Yehuda Shoenfeld said that vitamin D may prevent cardiovascular incidents in patients with APS, as a preventive action. However would be important to have the concept of APS specialist.

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thanks, got appt in January,will discuss it then

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