Hi there I have Hughes syndrome and have been diagnosed with an umbilical hernia, which itself is quite a straight forward procedure however

Hi there I have Hughes syndrome and have been diagnosed with an umbilical hernia, which itself is quite a straight forward procedure however I have a blood clot in the ivc vein which has fibrised (hardened) and totally blocked the ivc vein. Now this is where the complications begin the ivc takes the blood from the bottom half of the body to the heart and to manage this my body has had to create diversions and open new routes for the blood to reach the heart. I am concerned that my abdomen area is full of vessels which have opened up as these diversions any surgical incisions related to the hernia may cause a bleed or some other damage which might only show up when I am back on warfarin on an inr of 3.5 to 4. I have had the hernia itself scanned and there seems to be no vessels within it. I have just had my 6 monthly appointment with Dr Madhock and he says that the scan may not pick up some vessels which may still be feeding blood to the heart. I am now confused and worried should I cancel the procedure.

Regards. Michael Jenkinson.

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  • These are definitely questions to be directed to your consultant, whether you are seeing them in person or talking on the phone please do, write down in short bullet points, what you wish to ask about, I am sure they will be able to answer your questions as I am sure they will not want to get started on this until they have the full detail. You need also to ask about the bridging needed if you are having a general anesthetic. Perhaps somebody else on here has had similar. Mary F x

  • Thank you Mary, I have spoke to my rheumatologist regarding this, firstly I have appointment with a vascular surgeon who is already familiar with my situation to talk over the pros and cons and if the surgery is then necessary. Thanks for the advice.

  • Good news, several members on here and other ADMINS are very clued up on operations and bridging etc. Mary F x

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