I am not entirely happy with the care I am getting locally, mainly as I am not sure that there is a lot of joined up thinking going on, ie high ALT is being dealt with by hepatologist, APS overseen by rheumatologist and also promised tests don't seem to get done, so I am getting intermittent breathlessness and they said about a lung CT months ago but now seem to be back tracking. Also I think they have got my INR range too low but won't listen to me - I'm just the person with the condition after all! So I thought I would spend a couple hundred pounds to see someone but can't decide which one. The rheumatologist has asked Prof D'Cruz for his advice about some things so she might respect his opinion I suppose, but I want to have the best overall advice for me. In the same hospital that I am being seen at there is someone on the Hughes Foundation specialist list but I am not sure if it would be politic to ask for an internal change or if I will be seen as even more of an 'arsey' patient than I am already!
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