How do i summarize symptoms. - Hughes Syndrome A...

Hughes Syndrome APS Forum

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How do i summarize symptoms.

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Someone (I think it was Mary) suggested writing symptoms in bullet points. Although I'm always writing things like this at work (teacher), every time I try and write about me, I just seem to go off on a mad ramble. I don't want to leave out something important, but at the same time I know a few simple notes will be more effective than my life story! I'm seeing a hemotologist tomorrow, any advice on reducing what I want to say?

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Tonkawoman69 profile image
Tonkawoman69

hi Alison,

What symptoms do you get with Hughes? Did you say your a teacher? I'm a teacher off on long term sick. If you are a teacher how do you cope with your job? I have to write everything down. I forget. Are you working part time or full time? Are you on Warfrin?

I'd really be interested.

Hope you are OK?

Andrea x

Regarding symptoms, explaining them is something I find really difficult, but I seem to be on the milder side of average compared to most people here, although mind numbing confusion slurry speach, screwy vision and horrific lapses of memory do make teaching seem like a daft career!

Fortunately (?) I'm also profoundly dyslexic, so over planning has always been part of my life. Actual lesson times add up to around 18 hours a week (is that part time?), and while I enter each lesson with very detailed plans - including what do do if I start to slur, or get such a blinding headache I can't make out the kids, I only actually teach 5 different levels , and obviously the plan I didn't use can be used another day - so with repetition and recycling- planing takes up close to 20 hours most weeks.

Somehow, my boss (who kind of knows - but we never discuss my various problems) has effectively reduced huge amounts of my work by not requiring much in the way of reports or meetings. A new colleague once asked why - and was told that the head just let's me do what I want as I have one of the highest pass rates in our half of the country, usually request the weakest students, and the kids are invariably happy and behave well.

I would love to do less hours - I think 3 a day would be bliss, but my husband is out of work, there are no benifits, and we need the health insurance.

if I didn't work at all, I know I'd be more sick, as it gives me such a positive feeling of doing something worth while, but if I was forced to fill in constant paper work I think I'd have a breakdown.

Good luck feeling better soon, do you miss your job? What part?

GinaD profile image
GinaD

I see your question was 17 hours ago so it may be a little late for my suggestion to be useful.

Have you tried dividing your cpsymptoms into categories? And Instead of including an explanation to as given symptom, just put an asterisk and tell the doc that those symptoms marked with an asterisk seem TO YOU to have relationships to other symptoms, or other events in your medical history, and you will be happy to provide more information on these as needed.

Gina

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