Staying pregnant after a stillbirth at 27 weeks.

[arubey]

Hello i just said hello and goodbye to my sweet baby boy carter who was stillborn at 27 weeks. I am 204 pounds, and was on a prophylactic dose of lovenox. (80 mg/ 2x daily) What did you ladies take to keep your babies in your belly? The autopsy came back as clots in the placenta. Thank you.

[tchance11]

Please know that you are not alone in your sorrow!

Tina

[Hidden]

I lost identical twins at 30 weeks, I was on heparin, this was before I knew I had LA. My consultant said in future I would also need low dose aspirin as this crosses the placenta so keeps the blood flowing there. While the injections protect the mother and does not cross the placenta. Do you have an obstetrician? My heart goes out to you, losing a baby so late is heartbreaking xxx

[Hidden]

Dear Arubey,

I am so sorry to hear about the loss of your little baby boy, Carter my heart goes out to you. Take care of yourself and let your family take care of you too.

[margaretjo]

My heart is broken for you please be good to yourself

[Cathyl]

Hi, So very sorry for your loss. I lost a baby at 12 weeks, then had severe early onset preeclampsia and HELLP Syndrome so my little boy was born at 30 weeks with IUGR, ver stressful at the time but thankfully he was fine in the end, he's six now still little,but healthy! I was then diagnosed with APS. Next pregnancy I took 150mg of aspirin as soon as I had a positive test then Clexane injections after viable scan at 6 weeks, I also took high dose folic acid ( forgot dose but it was around 10 times usual, think the folic acid was for first 20 weeks,not sure). I had frequent scans 2 weekly after 26 weeks weekly after 30, to monitor growth and blood flow across the placenta. On this regime my little girl was born after induction at 38 weeks she was also growth retarded but she's caught up now and is fine. Was told that without the meds my chance of a normal pregnancy without miscarriage/stillbirth/preeclampsia were less than 50%. if you don't have one find an obstetrician who specialises in fetal and maternal medicine.

[daisyd]

I think everything has been said about the treatment that hopefully leads to a successful pregnancy.

I am so sorry for your loss and really feel for you.

Please take care of yourself

Xx

[Jane-Martin]

I am just so sorry, my heart aches for you.

[starships]

I am so very sorry for your loss and my heart goes out to you. Although I have not had a successful pregnancy since being diagnosed after my third miscarriage I have done a lot of research and visited the top APS in pregnancy specialist in the UK if not the world Raj Rai. I had a TEG test performed and this showed that for me 75mg is not enough aspirin and I needed to go up to 150mg plus heparin with my next pregnancy should I be lucky enough to conceive again. This would give me a 75-80% chance of a live birth compared to 10% without any treatment or 40% with aspirin alone. I have not seen any figures or studies for heparin alone.

I hope you are being kind to yourself and if you need to talk we are here for you.xx

[LucyLocket in reply to starships]

I was also lucky enough to be seen by Raj Rai at St Mary's and have him to thank for my darling girl who is now 7 years old. Like you I was on 150mg aspirin up to about 34 weeks (I think?). My other problem was getting pregnant in the first place and Mr Rai did ovarian drilling on me which did make me ovulate again (briefly!). Apparently the infertility issues can go hand-in-hand with all the other health issues and I hope you are successful with your next pregnancy x

[Annslack]

So sad to hear of your loss. Please take things easy if you can and be extra kind and gentle to yourself. Thinking of you. Ann

[MrsM1988]

Sorry for your loss. I lost my girl at 40 weeks so understand exactly what your saying, a clot had formed over the placenta. I took 75 mg of aspirin each day, was monitored each week at hospital and have gone on to have three beautiful children. Wishing you all the best for the future x

[LucyLocket]

I'm so sorry to hear about you losing little baby Carter and nothing anyone says at this time will stop that heartache for you.

I really hope that with close care and supervision your next pregnancy will work out for you. xxxxx

[emmaj]

I am so sorry for you and your little boy and your family,if I had one wish it would be that not another little baby would be lost ever - this syndrome hurts in the most possible hurtful way, and unfortunately we have to live with our grief for the rest of our lives, a wound that will never heal or get better. I hope you find some way to live alongside it,and make the best of your life in whichever way you can. I took heparin once a day,and also 75mg aspirin as this stops the platelets sticking together aswell as the heparin injections that thins the blood,and regular doppler scans to check the blood flow through to the placenta. Your baby will be with you throughout your life in spirit and in your heart until one day you can meet again. The only way I could deal with it was to think for how bad it hurt to lose mine, it meant that id had someone that meant so much to me even if they were only meant to be given to me for such a short time and I was grateful for that time,and i would never have not wanted that time with them xx im sending you some baby glue and the wish that one day you will have that little person to take home with you,and this little lost one will be the guardian angel for the next shining the way for it to get to you safely - lots of hugs xxx

[Hidden]

Want to add my sympathies and mental huggs too. Words fail me, I don't really have any advice, (never managed to carry long enough for a hart beat) but my hematologist says that everyone with sticky blood should take extra folic acid, and at least double the normal does for a few months before concieving to be highered in pregnancy according to blood tests in addition to whatever blood thiners are needed. Personaly , I really liked that doctor and trusted her, but my husband is convinced last miscarriage due to her under treating so I don't see her anymore.

Too many of my friends have had losses and problems for different reasons, it seems like they all had kids this year though (from adoption, IVF, medical control or finally getting lucky) I'm sick of people saying there is hope for me yet - this had been a daily obsetion of mine for 12 years. Oddly, 3 friends rated my advice when they had first miscarriage as most helpful- find a doctor you really trust, if your not sure - keep looking.

Really hope when your ready all will be OK (hard to find right words - sorry)

[momtomany]

I am so sorry for your loss.

I was not diagnosed until after my last pregnancy, and my daughter was IUGR and we both nearly died. The only thing that saved us was me switching doctors 3 times during the pregnancy! Each doctor claimed to be a specialist, but most were not, and when I felt the treatment was inadequate I switched. I had to beg my last doctor to take me on since I was in the 3rd trimester. The hospital nurses recommended her, and luckily she took me. I credit her for saving our lives.

I will keep you and your sweet baby boy in my prayers.

[arubey]

Thank you all for your kind words. Today i keep blaming myself wondering what if i did x,y,z. I just can't believe my baby boy won't be born healthy, and that he is already gone.

[Hidden]

I felt exactly the same as you when losing my twins late last year, there was a blood clot in the placenta also. There is nothing you could have done, do not blame yourself. This condition is so cruel but out of our hands. Make sure you get help to come to terms with your loss. Cry as much as you need. I really think a stillbirth is one of the most traumatic experiences a woman can go through and it's hard to understand unless you've gone through it. Get a good obstetrician and when you feel strong enough- try again with the right treatment. I'm sure we will get there! PLEASE don't blame yourself. Xxx

[MaryF Administrator]

Hello there, I am so sorry to hear about the trauma you went through, so similar to so many on here, I hope this site can help you and support you to do whatever you feel is best for the future, we are a good support network on here. The chances of safe pregnancies increase greatly with diagnosis and the correct medical practitioners and medication, Wishing you all the best, Mary F x

[kathyD64]

Hi so sorry to hear about your recent loss - for me i had placental abruption at 30 weeks and missed abortion at 20 weeks a year before. My daughter survived i was on heparin first trimester plus on steriods because i had sagital sinus blood clot (in the brain hence the steriods). I was transferred to warfarin in the second trimester and was due to be converted back to heparin ready for the planned c section.

Rachel was born by emer c section because i went into labour after placental abrupion she weighed 2lbs.10 ounces and fortunately had mature heart and lungs due to the steriods. (often steriods are used if they are expecting you to delivery pre term - for me it was to treat raised intracranial pressure)

It is such a massive loss and traumatic thing to go through and no doubt with any subsequent pregnancy you will be heparinsed - warfarin in the first trimester can damage the fetus hence they switch to it in the 2nd trimester.

When you feel ready i am sure you will have a healthy baby hun, i think you are bound to reflect on what you did or didnt do but this is part of the grieving process please dont blame yourself - i of course thought of xyz as well when i lost my first baby at 20 weeks big hugs and kisses kathy xxx

[jessielou]

My heart goes out to you hon, I'm so sorry for the loss of your precious little boy Carter. I know the pain and heartache. It's so hard to comprehend and so easy to blame ourselves, try not to hon. Take time for you and be kind to yourself.

Above advice re heparin and aspirin the usual treatment. I hope when you feel ready that things work out.

Here and if we can help we will

Take care gentle hugs love Sheena xxxx

[3boys]

I am so sorry for your loss. I had 3 losses. But the were at 12 and 14 weeks. My loss at 14:weeks was clots in the umbilical cord too. I did have a son after my 3 losses. I will keep you in my prayers.

[arubey]

Thank you all for your kind words and advice. This forum is a valuable asset. I wish i would have found this 5 years ago when i was diagnosed.