Does anyone have Raynauds and Carpal ... - Hughes Syndrome A...
Does anyone have Raynauds and Carpal Tunel with the APLS?
That would be me! I had carpal tunnel when I was in my 20s, the APS was diagnosed almost 20 years later. Raynauds is interesting, need to match your nail varnish to the colour of your fingers 
I have Raynauds and have had carpel tunnel.
Hi there I have carpal tunnel, and it is closely associated with thryoid problems, which i also have. Mary F x
If you have not be tested for high Uric Acid levels and Vit D I would suggest you get this checked.I had burning feet, which led to these blood tests, which led to finding a
small tumor on my parathyroid gland which was possibly caused from taking Synthroid for 25 yrs. had surgery, no need for synthroid and all levels are normal.
Did you know Atenolol for highblood pressure can cause Raynauds? it is very interesting to research medicines that can cause Raynauds. I was on this blood pressure pill for 20 years. This is not fun i it? Keep your eye on your lab tests it is important to our healing.
I have carpal tunnel in both hands and have had Raynaud's Phenomenon more than once.
I was not diagnosed with APS until 2010/11.
CanaryDiamond10
Hi there, yes I work full-time.
First practical actions that work for me and they are all focused on warmth even in the height of summer which can be 45degsC here in Italy. If there is a big temperature change, eg we have a storm on a hot summers day, my symptoms take off big time.
For the winter: gloves, sometimes a thin thermal pair inside another pair (roars of laughter from my mates at restaurants when I take one pair of gloves off to reveal another pair and eat my meal with them on!), fingerless gloves for work but ones that support the wrist area, thick socks of course but large size to allow for swelling, shoes not too tight, I like lace ups and comfy big boots, lots of wrist and ankle exercises to keep everything moving and flowing. Hand warmers (the things you break and they heat up). Keeping the joints warm and moving makes a big difference for me, tai chi helps with that in my experience.
For the summer: you guessed it, gloves, always in the pockets of my jackets and it is a long time before my sock are put away! The dog is a convenient way of keeping your feet warm if you can persuade him to lay at your feet and act as a foot rest.
Second foods - I can't say anything that particularly works for this problem, but I have so many food intolerances and allergies that my diet is very 'clean' and I have less of a problem since I excluded grains. Hope that helps! Dx
Thank you. I have noticed dampness is a problem. We just suffered the worst Tonados in the history of the world. Thousands lost theri homes, 27 died, some of them children and teachers. I find stress
seems to flare up my raynauds in my feet. I have a really problem in the ball of the right foot and big toe. They say I am not diabetic. Had 6 weeks of PT on my feet did not help, some days it was worst. I saw a neurologist this week and will be having emg studies on both legs to test for nerve damage. It is hard to not be discuraged. I find Zanex,
plaqinel, Aleve, rest and water are my friends. Thanks for sharing. I work have a ministry that helps needy families. I just work to provide for myself.
It is hard to imagine what it is like to lose everything - I was in the UK and saw the breaking news about the big tornado on the tv (I don't have a tv in Italy), made me cry. It helps put the illness in perspective, other people are so much worse off.
Thank you for your ministry work. I was brought up in poverty and know how much difference people like you can make.
I hear what you say about your right foot. I too have a problem with my right foot it seems to lock as if it is twisted and can be very painful to walk on. It appears to be something I just have to live with.
Please don't be discouraged. Our strength comes from within, we are not our physicallity. Dx
Thanks so much. Yes I know we are God's children,
created by Him and I find this gives me more compassion for those in chronic pain. We must press on and pray for one another,for our doctors and those who have no one. I 've never met anyone from Italy. I can't imagine not having a TV. What kind of work do you do? Do you have family? Perhaps we can become good email buds. I hope you will visit my website if you can. shepherdsoflove.org
I will pray for you my new friend. Teresa
Hi Teresa, just looked at your website. I will send you a message. Dx
Did you have carpal tunnel surgery? I had it in 1988 on one hand and do not want it again.
Just bought a new keyboard for my computer and hoping it helps. I am self employed and must work as I am single. Do you have Raynauds in your feet? Does it affect your big toe
and the ball of your feet. My right food is a killer somedays, they same I am not diabetic.
What do you do for pain relief?
When I started to get numbness in my fingers, particularly my index finger, my GP suspected carpal tunnel syndrome and referred me to an orthopaedic consultant. The ortho consultant didn't think it was carpal tunnel syndrome and referred me to the neurologist for nerve conduction tests. The tests showed that the altered sensation in my hands and feet was due to peripheral neuropathy. I also get white fingers when it is cold. I think the peripheral neuropathy and the Reynauds are both caused by the sticky blood, and impaired circulation to the extremities which goes with the APS.
I operated for Hyperparathyreodose in 2006. Neurological I became worse after the operation.
I have carpaltunnel syndrom. The Neurologe at the hospital wanted to operate. I thought I could stand the pain and did not do the operation.
When I started warfarin 2011 the symptoms of carpaltunnel syndrom were almost gone.
I mean after I had started warfarin the carpaltunnel syndrome were better..
Does anyone else have May-Thurner Syndrome?
Arvind says APLS experts on every continent
Does anyone have experience of kidney problems and APS please?
Does anyone take Ginkgo Biloba with Warfarin?
