Struggling : Hey everyone recently diagnosed... - HIV Partners

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Struggling

Ryan1979 profile image
16 Replies

Hey everyone recently diagnosed about 7 weeks and I'm due back at the doctors next week to talk medication. Not told anyone about my situation apart from a few people I have met on line which has Been a huge help. Scared about starting medication and due yo my life I travel a lot so really hoping to get the 1 pill option. Any advise for a newbie

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Ryan1979 profile image
Ryan1979
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16 Replies

Not worry so much. There is such great meds out there now that can control it and staying healthy and a great attitude always help. Like my doctor always tell me Jimmy you are not going to die of AIDS! You might more likely get killed by a bus! Great! Lol.

Good luck!

Ryan1979 profile image
Ryan1979 in reply to

Are you on medication already. I travel a lot and just hoping I will still be able to do this I'm normally away about 6 months at a time

in reply toRyan1979

Yes I'm on two truvada and isentress and been on it six years with no side effects or anything.

Ryan1979 profile image
Ryan1979 in reply to

That's good I'm hoping something similar. My big issue is access to medication when I'm away and check ups but as I'm supposed to be in Greece I'm looking at some options there as well

in reply toRyan1979

Good luck and I do hope everything works out for you.

Loco83 profile image
Loco83 in reply to

That's exactly the same thing my doctor said to me.

BlkDmd profile image
BlkDmd

I would advise you to Never tell anyone about your status unless the law requires you to. Some people are met with open arms but most are not. If, and when you do...u may/will see exactly why I told you to keep it to yourself.

Echoboy profile image
Echoboy in reply toBlkDmd

I had a very different experience from yours and I completely disagree. I think it's an extremely negative view and I'm really sorry you never found anyone that was supportive.

I have told quite a lot of my friends/ work colleagues and absolutely nothing has changed.

Ronjohn62 profile image
Ronjohn62

You will probably go on genvoya or triumeq. There are plenty of support groups out there. Not sure where you live, but if you need help, let me know.

Ryan1979 profile image
Ryan1979 in reply toRonjohn62

I'm in glasgow but travel everywhere with work . Having a nightmare at the minute

Ryan1979 profile image
Ryan1979 in reply toRonjohn62

In glasgow

Mate thanks gor the messsge. Lot to take it only germ diagnosed about 7 weeks. Appear to be healthy though which I good. Cd count was 435. Just have really down days worrying about medication that's the next thing. Really hoping 1 pill a day with bi side effects.

3dollarbill profile image
3dollarbill

Be very careful who you disclose your HIV status to! Been living with HIV for 28yrs and I'm living a healthy productive life! You have to be comfortable with the knowledge and educate yourself about your status before you should share it with others!

Ryan1979 profile image
Ryan1979 in reply to3dollarbill

That's amazing 28 years are you on medication. If so how long have you been on it and do you get any side effects. I know that I will get there eventually it's just Going to take time. I'm little worried about starting I've only been diagnosed around 7 weeks my cd count was 435. Which I was told was good as no real damage to my immune system.

Camargue profile image
Camargue

I was diagnosed ten years ago and CD4 count was 3! Ten years later my CD4 count is 900 thanks to amazing meds.

Some very good advice I was given was that you shouldn't feel obliged to tell anyone and tell only people who you think can help YOU.

I have never tried to understand the science behind the drugs but have always made sure things are explained clearly / in lay man's terms if I feel something isn't going right.

1997begins profile image
1997begins

Be completely honest with your doc, ask lots of questions, always.. I'm taking Atripla, one pill nightly, almost twenty years poz , undetectable viral load, always be honest , ask lots of questions . Good luck

Ryan1979 profile image
Ryan1979 in reply to1997begins

That along time have you been in the medication that long. Have you ever got ill that's whst I'm really scared about st the minute. Although I don't see any readin why if Take the pill

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