ectopic beats and flutters

[wbekim]

after many years 30+ still unable to accept heart irregularities to be normal and nothing to worry about it is impossible to ignore the fact that my heart is behaving unnaturally and so indiscriminately I cannot understand why there is no cause and remedy for the horrible feeling created every irregularity makes me feel like I am going to have a cardiac arrest but because I only have a1000 or so a day they do not reach the threshold for ablation I just can’t see any positive outcome does anyone else have a similar experience

[Ppiman]

Yes - similar here and, for sure, the fear of some major event can come into my mind at time when the bumping in the chest is at its worst. It feels much like when I have AF except perhaps with that I can get a sense of racing if the pulse is higher.

The reason it can't easily be treated, I gather, is that the ectopic beats fire off from various places in the heart muscle, with each and every heart cell being potentially capable of firing off to cause an ectopic beat. I have read that where the cause is not "multi-focal" (i.e. from various places) that an ablation can sometimes cure it, but it depends upon where the beats arise.

I bought myself a Wellue 24-hour AI ECG device a year or so back to keep a check on my AF and ecopics when they are at their worst. I find it reassuring.

Steve

[Malayabalaya]

Hiya Sorry to hear you’ve been struggling with ectopics for so long. Have you not been offered any medication? Cardio-specific betablockers are first line although don’t work for everyone. I had that experience so am now on Flecainide plus betablockers ( low dose) and the ectopics having been 22% of beats are now very rare for me and I feel like a different person. I sympathise with you as the ectopics can cast a real shadow. All best to you

[dturt]

Hi there, Yes I absolutely understand where you are coming from. I was diagnosed with them at 18 and now 54, and still struggle with it daily and I am constantly fearful. The majority of the time it is nothing to worry about, but it's the constant reminders of these sensations that make it a struggle and if you are anything like me, I avoid doing so many things I would like to do because I am scared I might over do it, or bring it on. The most subtle movements like leaning forward or to the side can cause it. I recently had a 24 hr ECG and they have now spotted something which I am now being referred to cardiology for, so I am quite concerned. I think it goes to show that if you have a feeling you need more thorough checks, try and persevere to get them done. I am not on tablets as I am considered to have a low percentage of palpitations. It is definitely a battle of the mind over body, so I feel for you. I have had so many ECGs over the years, and ths latest one seems to have caught something which may only happen intermittently, so it never does any harm to get another check. Hope things improve for you.

[wbekim in reply to dturt]

Thanks for your reply 40 years and still literally frightened to death every time especially as they occur randomly the fluttering is especially terrifying you feel as though your heart is going to stop or continue to flutter and eventually give up the pulling down feeling of the heart also causes immense anxiety I am resigned to having these always and it does not promote any quality of life

[dturt]

interesting that you describe the pulling down feeling, as I get that also just below the ribcage into my tummy, it's horrible I know. I only hope that knowing you are not the only one experiencing this helps just a tiny bit. The anxiety has meant I haven't worked for 3 years now so it is very debilitating.

[wbekim in reply to dturt]

I have continued to work as I find myself more able to disconnect from my symptoms for a few seconds when having to concentrate on something else the more I explore these sites and hear other people’s experiences the more I think because somebody else is going through something similar it must be normal but in reality that isn’t the case we are all ill and being told just to get on with it when we are probably suffering more mentally than most depressed people

[TracyAdmin Partner ArrhythmiaAlliance]

Hello

It is natural to feel anxious and overwhelmed, and you are not alone as many of the members here have indicated. If you are continuing to experience these feelings, please speak to your doctor or contact the NHS Talking Therapies service for advice on managing your feelings: nhs.uk/mental-health/talkin...

Alternatively, please feel free to contact our Patient Services Team for further support and advice.

Kind regards

TracyAdmin

[Spammy123]

Iv been having them everyday for the past two weeks. Got a 24 hour ECG in four weeks but I can't wait that long it's driving me crazy. I have a heart condition anyway but my last echo showed everything is ok so I don't know what's causing it. Do you get tiredness and chest pain too. Iv read alot of posts which has reassured me. Lots of calming breathing exercises, and little jobs to keep your mind off it as I think it makes it worse when your trying to sense the next skipped beats.

[wbekim in reply to Spammy123]

Yes the apprehension seems to encourage them and trying to accept them as normal is much harder when the symptoms come slightly differently either bump or a bang flutter for a few seconds a squeeze of the heart or a dip drop feeling like going over a hill as well as the general irregular timings of heartbeat and the fast or slow beats a realistic daily amount without me exaggerating would be approx 1500 as the burden required for procedures is around 10,000 I am resigned to living the rest of my life in constant fear

[Spammy123]

Have you got any appointments or anything to look into it. I know what you been about the dip drop, it is like your going over a bump but instead of feeling it in your belly it's in your heart. I had these funny beats over the weekend and think I went into panic mode and made everything 100 times worse. Chest pain, constantly had my hand on my heart counting the beats. After a few hours I thought, right, I'm going to have a small glass of wine and watch some TV on my laptop, something funny that made me laugh. I can honestly say it worked a treat my whole body relaxed and I felt instantly better for the rest of the night. I know the experts say don't drink or eat rubbish. But nothing else worked so I tried it. Obviously it might not work for everyone but it's worth a try.

[wbekim in reply to Spammy123]

Had all tests known to man all came back non life threatening which is great but symptoms never fail to undo that reassurance and periods of relative calm seem to be getting less and less can be watching tv and bang out of the blue flutter thud or flip flop and into panic or anxiety mode unable to concentrate on anything other than heart

[Evaluna in reply to wbekim]

Absolutely identify with you. Had mine since I was 36 and am now 74. Episodes have increased over the years and, like you, I can get days when I probably notice 2 or 3 thousand. I also get bigeminy and atrial tachycardia which I find hard to tolerate. Interestingly, when I have a holter monitor there are always many more on the monitor than I recorded! I can't provide a cure sadly. I can be under a lot of stress and get hardly any or completely relaxed and get loads. I take 1.5mg of bisoprolol but not sure it really makes any difference as I can still get thousands. Having a laugh helps... even if you get them when laughing. Someone on here once said that she just sees it as her heart dancing and ignores them. I try and remember lots of others have the same and reading these posts helps me... and that I'm still here after nearly 40 years. Good luck.

[wbekim in reply to Evaluna]

Thanks for your reply I agree they are so random and indiscriminate and it is all about acceptance that they are benign but why do we have them and why can we not stop them hiccups and sneezing are not life threatening but could and should you be expected to live with them constantly

[Evaluna in reply to wbekim]

Your consultant has probably told you the same as mine did me that having an ablation carries risks and no guarantees that it will be a cure.I guess we have to live with them because there is no simple cure. Although there has been research I think, understandably, more money/effort will go into arrythmias that are life threatening. Have you seen the videos posted by Sanjay Gupta of York cardiology. He's very reassuring.

[Spammy123]

I get that too randomly. Just try and breathe through it and assure yourself your ok. Try to change the way you think about it.